Programs

January

• 6^th – Advocacy Coalition Call, Pre – Leg Breakfast Prep
• 11^th – Board of Directors 2025 Annual Strategic Planning Summit, Greenville
• 15^th – Legislative Breakfast, Columbia

• 21^st – Bleeding Disorders Advisory Committee (Industry) Meeting, Greenville

• 21^st – Virtual Reach and Teach Platelets, VWD, Ultra Rare Support Meeting

February

• 3^rd – Advocacy Coalition Call

• 8^th – Board of Directors Meeting
• 20^th –Virtual Advocacy Days, Pre-State Days Training

• 25 – 26^th – State Advocacy Training / Legislative Days

• 28^th – Rare Disease Day

March Bleeding Disorders National Awareness Month

• 1^st – BDASC VWD Awareness Day Virtual Event
• 3^th – Advocacy Coalition Call

• 5 -7^th – NBDF Washington Days
• 8^th – Board of Directors Meeting
• 15^th – BDASC Untra Rare Bleeding Disorders Awareness Day Virtual Event
• 27^th – HFA Symposium – San Diego, Calif.
• 30^th – BDASC Women Who Bleed Awareness Day Virtual Event

April

• 4 – 6 – Adult Connections Symposium, Greenville

• 7^th – Advocacy Coalition Call
• 12^th – Board of Directors Meeting
• 17^th – World Hemophilia Day Celebration
• 25^th – BDASC Academic Scholarship Program Deadline
• 26^th Camp Brave Blood Family Camp, Chapter Day (Prisma Health Greenville) Marrietta, SC
• 28 – 30^th – CSO National Meeting (Executive Director)

May

• 5^th – Advocacy Coalition Call

• 10^th – STEP for Bleeding Disorders, Columbia
• 13^th – Bleeding Disorders Advisory Committee (Industry) Meeting
• 17^th – Board of Directors Meeting
• 20^th – Virtual Reach and Teach Platelets, VWD, Ultra Rare Support Meeting

June

• 2^nd – Advocacy Coalition Call

• 6 – 7^th – BDASC Annual Meeting & HELLO Conference / Board of Directors Meeting
• 22 – 27^th – Greenville Camp Courage Kids – Chapter Day 24th
• TBD: June or July – Teen Retreat- SC / NC

July

• 7^th – Advocacy Coalition Call
• 7 – 12^th – Camp Burnt Gin (kids and teens) Chapter Day – 8th
• 14^th – Board of Directors Meeting

• 22^nd – Virtual Reach and Teach Platelets, VWD, Ultra Rare Support Meeting

• 27th – 31st^st – Greenville Camp Courage Teens

August

• 4^th – Advocacy Coalition Call
• 10^th – Board of Directors Meeting
• 21 – 23^rd – NBDF Bleeding Disorders Conference (Denver)

September

• 1^th – Advocacy Coalition Call
• 2^nd – Virtual or Live Reach and Teach Platelets, VWD, Ultra Rare Support Meeting
• 9^th – Bleeding Disorders Advisory Committee (Industry) Meeting

• 13^th – Board of Directors Meeting

• 26^th – Par for the Clot Golf Fundraiser

October

• 6^th – Advocacy Coalition Call

• 11^th – Board of Directors Meeting

• 17 – 19^th – Potential Fall Family Advocacy Camp & Medical Symposium

November                           

• 3^rd – Advocacy Coalition Call
• 8^th – Board of Directors Meeting
• 17 – 20^st – NBDF Chapter Leadership
• 18^th – Virtual Reach and Teach Platelets, VWD, Ultra Rare Support Meeting

December

• 1^st – Advocacy Coalition Call
• 13^th – Board of Directors Meeting
• TBD – Winterfest State Meeting (Columbia)

Additional Events in 2025 (dates to come)

• Community Engagement & Connections Events
• Par for the Clot and STEP Committee Meetings
• NOW Conferences, National Outreach von Willebrand Disease (vWD)
• NBDF Insurance and Reimbursement Conference
• SC Together Non- Profit Summit Conference
• Chapter Regional HTC Technical Meeting

Support Group Connectivity Events        

• BDASC – YES: Young Families: Empowerment and Support Programming
• BDASC – Men’s Programming
• BDASC – Women’s CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming
• BDASC Teen Programming
• BDASC VWD Connections
• BDASC Rare Connections
• BDASC Spanish & Black / African American Connections