Educational Von Willebrand Retreat

Being a member offers benefits that go well beyond raising awareness for and advocating on behalf of those with bleeding disorders. We provide education and networking opportunities, along with support services while promoting ongoing research to improve the quality of life for those affected. Throughout the year we keep our members abreast of these opportunities as well as the latest news and developments in the field of bleeding disorders through a variety of high-quality programs and events, with most events at no charge to our registered members.

Our programs and events, including the numerous support groups and retreats we provide to our members, are made possible by donations and support from our bleeding disorders community and partners.
Bleeding Disorders Association of South Carolina
2025 MAJOR EVENTS CALENDAR

PLEASE READ AND VIEW OUR COVID – 19 MITIGATION POLICY AND WAIVER RELEASE TO ATTEND LIVE EVENTS: CLICK HERE

 

January

  • 6th – Advocacy Coalition Call, Pre – Leg Breakfast Prep
  • 11th – Board of Directors 2025 Annual Strategic Planning Summit, Greenville
  • 15th – Legislative Breakfast, Columbia
  • 21st – Bleeding Disorders Advisory Committee (Industry) Meeting, Greenville

February

  • 3rd – Advocacy Coalition Call
  • 28th – Rare Disease Day

March Bleeding Disorders National Awareness Month

April

May

  • 5th – Advocacy Coalition Call

June

  • 2nd – Advocacy Coalition Call

July

August

  • 4th – Advocacy Coalition Call
  • 8th – Support Group Community Connections Event
  • 10th – Board of Directors Meeting
  • 21 23rd – NBDF Bleeding Disorders Conference (Denver)
  • 30th – Community Connections and Engagement Event

September

  • 13th – Board of Directors Meeting

October

  • 6th – Advocacy Coalition Call
  • 7th – Community Engagement and Empowerment Educational Dinner Event
  • 10th – Support Group Community Connections Event
  • 11th – Board of Directors Meeting
  • 17 – 19th – Potential Fall Family Advocacy Camp & Medical Symposium

November                           

December

  • 1st – Advocacy Coalition Call
  • 11th – Community Engagement Educational Dinner Event
  • 13th – Board of Directors Meeting
  • TBD – Winterfest State Meeting 

Additional Events in 2025 (dates to come)

  • Community Engagement & Connections Events
  • Par for the Clot and STEP Committee Meetings
  • NOW Conferences, National Outreach von Willebrand Disease (vWD)
  • NBDF Insurance and Reimbursement Conference
  • SC Together Non- Profit Summit Conference
  • Chapter Regional HTC Technical Meeting

Support Group Connectivity Events        

  • BDASC – YES: Young Families: Empowerment and Support Programming
  • BDASC – Men’s Programming
  • BDASC – Women’s CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming
  • BDASC Teen Programming
  • BDASC VWD Connections
  • BDASC Rare Connections
  • BDASC Spanish & Black / African American Connections