Yearly Calendar: Programs & Events
  Educational Von Willebrand Retreat

Being a member offers benefits that go well beyond raising awareness for and advocating on behalf of those with bleeding disorders. We provide education and networking opportunities, along with support services while promoting ongoing research to improve the quality of life for those affected. Throughout the year we keep our members abreast of these opportunities as well as the latest news and developments in the field of bleeding disorders through a variety of high-quality programs and events, with most events at no charge to our registered members.

Our programs and events, including the numerous support groups and retreats we provide to our members, are made possible by donations and support from our bleeding disorders community and partners.
Bleeding Disorders Association of South Carolina
2024 MAJOR EVENTS CALENDAR

PLEASE READ AND VIEW OUR COVID – 19 MITIGATION POLICY AND WAIVER RELEASE TO ATTEND LIVE EVENTS: CLICK HERE

We will continue to monitor the current pandemic situations and COVID -exposure and adjust as needed.

January

  • 8th – Advocacy Coalition Call
  • 10th – Legislative Breakfast, Columbia
  • 12th – Community Connections & Engagement Outreach – Camp Readiness
  • 16, 23, 30th – HFA IMPACT Workshop
  • 18th – Bleeding Disorders Advisory Committee (Industry) Meeting, Greenville
  • 19th – Gene Therapy Dinner Engagement
  • 20th – Board of Directors 2023 Annual Strategic Planning Summit, Greenville
  • 25-28th – NBDF HEDI Summit

February

  • 1st – Community Connections & Engagement Outreach – Camp Readiness
  • 5th – Advocacy Coalition Call
  • 10th – Board of Directors Meeting
  • 23rd – Community Connections & Engagement Outreach – Black / African American Health Equity
  • 27 – 28th – State Advocacy Training / Legislative Days
  • 29th – Rare Disease Day

March Bleeding Disorders National Awareness Month

  • 5th – Advocacy Coalition Call
  • 6 -8th – NBDF Washington Days
  • 9th – Board of Directors Meeting
  • 22 – 24th – Adult Connections Symposium, Greenville

April

  • 1st – Advocacy Coalition Call
  • 11 – 13th – HFA Symposium – Indianapolis
  • 13th – Board of Directors Meeting
  • 17th – World Hemophilia Day Celebration
  • 20th – WHD Celebration
  • 26th – BDASC Academic Scholarship Program Deadline
  • 27th – BDASC Welcome at Camp Courage Family Camp
  • 29 – May 1st – CSO National Meeting, New Orleans, Louisiana

May

  • 6th – Advocacy Coalition Call
  • 11th – STEP for Bleeding Disorders
  • 14th – Bleeding Disorders Advisory Committee (Industry) Meeting
  • 18th – Board of Directors Meeting
  • 25th – Community Connections & Engagement Outreach – Women, VWD, Rares
  • 31st – Let’s Talk Mental Health

June

  • 3rd – Advocacy Coalition Call
  • 14th – 46 Voices Outreach – (Abbeville)
  • 15th – Board of Directors Meeting
  • 21 – 22nd – BDASC Annual Meeting & HELLO Conference
  • 25th – Camp Courage Kids (Greenville HTC) BDASC Ice Cream Social – June 25th

July

  • 1st  – Advocacy Coalition Call
  • 9th – Camp Burnt Gin, Ice Cream Social
  • 13th – Board of Directors Meeting
  • 18 – 21st – Teen Camp BDASC / BDFNC (TBD)
  • 26 – Educational Branded Dinner
  • 27 – Aug 1 – Teen Camp, Camp Courage (Greenville HTC)

August

  • 1st – Community Empowerment and Connections Dinner
  • 5th – Advocacy Coalition Call
  • 10th – Board of Directors Meeting
  • 24th – Charleston Community Event
  • 31 – Community Connections Engagement Event – Myrtle Beach

September

  • 8th – Community Connections & Engagement Outreach, Hispanic Community
  • 9th – Advocacy Coalition Call
  • 10th – Bleeding Disorders Advisory Committee (Industry) Meeting
  • 12 – 15th – NBDF Bleeding Disorders Conference (Atlanta)
  • 14th – Board of Directors Meeting
  • September 20 – 22nd – Junior National Championships (Nevada)
  • 27th – Par for the Clot Golf Fundraiser – rescheduled to 11.15.24

October

  • 6th – Mom’s Brunch – Greenville
  • 7th – Advocacy Coalition Call
  • 12th – Board of Directors Meeting
  • 19 – 20th – Fall Family Advocacy Camp 

November                           

  • 4th  – Advocacy Coalition Call
  • 12th – Community Engagement Dinner – Clinton
  • 15th – Par for the Clot Rescheduled
  • 16th – Board of Directors Meeting
  • 18 – 21st – NBDF Chapter Leadership
  • 30th – Community Connections & Engagement Outreach, Teens Transitioning

December

  • 1st – Advocacy Coalition Call
  • 14th – Winterfest State Meeting (Columbia)

 

Additional Events in 2024 (dates to come soon)

  • NOW Conference, National Outreach von Willebrand Disease (vWD)
  • NHF Insurance and Reimbursement Conference
  • SC Together Non- Profit Summit Conference
  • HTC / Chapter Regional Technical Meeting

Support Group Connectivity Events (planned and additional to come)

  • BDASC – YES: Young Families: Empowerment and Support Programming
  • BDASC – Men’s Programming
  • BDASC – Women’s CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming
  • BDASC Teen Programming Support Group
  • VWD and Ultra Rare Support
  • Spanish Community Support
  • Black / African American Community Support