We know what it is like to receive news about your health or the health of a loved one that impacts you for the rest of your life. You have a bleeding disorder, they said. Your career, hobbies, where you live, family planning, and many other life decisions are now all affected. Your doctor can prescribe a treat regimen, but where do you turn for help and support in between office visits. Who has the most relevant experience or practical knowledge to help you navigate life with a rare and life threating chronic disorder? Being part of a community that shares experiential knowledge often means the difference between effectively managing a chronic disorder like Hemophilia or von Willebrand Disease, or being debilitated by it.
As South Carolina’s leading resource for children and families affected by bleeding disorders, the BDASC maintains close relationships with our community, providing them the opportunity to network with other families experiencing the same situations, seeking guidance and emotional support for an often anxiety-ridden and frightening diagnosis. We support our families from the initial diagnosis throughout their lifetime.
Please enjoy scrolling through our support program events and be sure to join us!