H.E.L.L.OThe 2026 HELLO Conference embraces a forward-looking, heartfelt, and purpose-driven theme—one that reflects progress, unity, and momentum within our bleeding disorders community.
Hope, Innovation, and Moving Forward Together speaks to our shared commitment to shaping a stronger future. Together, we will explore new possibilities that drive progress, elevate voices that guide tomorrow, and strengthen our community today to create lasting change. Through creativity, advocacy, and collaboration, we look beyond what is and move confidently toward what can be—together.
Join us as we come together in unity and EMBRACE the opportunities of learning, connecting, sharing, and networking within the bleeding disorders community. Hear from experts in the field of bleeding disorders care and treatment. There is no other event like this one in our state. You will leave feeling empowered with support and knowledge. Please join us and see what it is all about. Please be sure to read all the information about the conference and apply online. There is no cost to those affected by bleeding disorders. We can’t wait to be together again!
670 Verdae Blvd., Greenville, SC. 29607 * 1-864-676-9090 * www.embassysuitesgreenville.com
BDASC’s Annual Meeting has taken place for 53 years and provides the South Carolina bleeding disorders community the opportunity to come together and network, learn, and enjoy the empowerment of education and support. The presentation of the Chapter’s Annual Awards are provided on Friday night; including our awarding of college scholarships, introducing new board members and celebrating those who have served. A teen track is provided concurrently with our adult programming. The HELLO Conference allows for attendees to enjoy a learning environment with educational presentations and breakout sessions. Information on current and future treatment therapies and bleeding disorders services are made available during our exhibit hall experience. All meals, sessions and childcare are included with hotel accommodation available for our traveling guests. The event is free of charge for BDASC members.
Deadline for Application Registration: MAY 15, 2026
Due to hotel venue requirements, all completed applications & teen programming / childcare forms must be received by Monday, May 15, 2026. You will be receiving shortly thereafter by email and phone call a conference reservations and hotel room confirmation should you need hotel room accommodations. Your application has not been accepted until you have received notice of confirmation from the chapter. If you do not receive a call or email, you have not been accepted to attend due to limited accommodations from the hotel. Limited hotel rooms are available for traveling guests and are awarded to BDASC members on a first return application basis and attendance history.
Disclaimers: As with all BDASC meetings, your personal information is secured only with the chapter. No personal information gathered or used by BDASC during the event will be shared with outside parties or vendors. BDASC will endeavor to ensure that all online meetings are safe and secure to the best of our abilities. Several waivers will be included and must be completed with your application once accepted, including teen and childcare services.
Hotel Accommodations Include:
A fitness center, the golf course, tennis courts, 2 pools; one indoors and one outdoors, wheelchair accessible, WiFi, and beautiful grounds for gathering and visiting with friends of BDASC.
Due to a limited budget and limited rooms, we will only be able to provide one room per family. Once your application is accepted, you will be provided a hotel room reservation which will cover the hotel room and tax only for the number of days assigned. Two room suites have a sofa bed, microwave and small refrigerator and can sleep up to a maximum of 6 guests. Room accommodations are single king or double/doubles. Rooms will be assigned upon a first-come, first-serve basis to qualified BDASC Members. If you abuse this reservation by a no-show response once assigned, you will be billed for all room and food accommodations.
Guest room stays include a hotel breakfast buffet available before the morning session beginning on Saturday, June 13th at 7:00 am for you to enjoy at your own schedule. There is no breakfast meal scheduled for those not staying in the hotel. A mid-morning break with snacks will be provided in the Exhibit Hall. A buffet lunch will be included for all attendees. During our lunch break, you may check out of the hotel and have ample time to visit with our Exhibitor Sponsors and community members. Saturday’s closing dinner buffet will be provided for all attendees out in the beautiful Hotel Terrace for evaluations, feedback, and connections to the community. This will conclude the HELLO Conference.
Conference Check-In / Check-Out:
Check in with the hotel begins at 4:00 pm, Friday, June 12th and Check-out is 12:00pm on Saturday, June 13th. (unless you have been granted a second night stay)
Each guest will be required to present a valid credit card / debit card upon check-in, on which an amount of sufficient pre-authorization can be obtained ($100.00 per night) to cover any charges for the guest’s use of the hotel’s ancillary services. Please call the hotel for questions and BDASC if this will be of concern so we can make special arrangements if possible.
Check-in with Bleeding Disorders Association of South Carolina is required and begins at 4:00 pm on Friday and will be across the atrium area in front of the meeting room for our Annual Meeting event. Your folders and name-tag will be provided. Rules for all hotels are the same; no children are allowed to stay in the rooms unaccompanied by an adult. A travel grant for mileage is available upon request if needed to attend. Please call the BDASC office prior to attending for information.
Brief Weekend Schedule
June 12th – Friday 5:30 – 9:00 pm:
BDASC Annual Meeting, Dinner Buffet & Chapter Recognitions
June 13th – Saturday 9:00am – 7:00pm: HELLO Conference Education Day Schedule:
Morning sessions will begin at 9:00am and run until 12:00pm for everyone with afternoon breakout sessions from 1:30 – 4:00pm. Exhibit Hall hours will be scheduled throughout the day. All meals and snacks are included. Our closing day casual dinner event will wrap up the Education Day Conference beginning at 5:30pm and lasting until 7:00pm.
Saturday: 8:30am – 4:00pm
Provided by: Corporate Kids Events
Your children are very precious to us and we have taken great care and costs to provide you ease of mind during your educational empowerment on Saturday. We have contracted again with Corporate Kids Events, INC. (https://conferencechildcare.com/) If you are using our kids camp daycare accommodations, you must fill out the informed required consent and return it prior to attending the conference. YOU MUST PRE-REGISTER, and sign all forms. You are also responsible for all your children during the two-day event. YOU MUST always remain in the hotel. Please also be mindful of the high cost per child so please take into consideration with last minute cancellations where we cannot fill your child’s reserved spot. Space is limited and additional children may be on a waiting list.
This Year’s Theme: Wild & Wonderful Animal Adventures
We’re bringing the Video Game Truck back to kids camp at our Annual Meeting. For 2 hours from 1:30pm – 2:30pm to have some fun video game time in the truck. All of the latest and greatest games on the Nintendo Switch, Xbox One, PS4, and WiiU will be available!
Saturday: 9:00 – 10:30am: Teen Programming – Part One
Saturday: 10:30am – 4:00 pm: Teen Programming – Part Two by Leading Edge
Join GutMonkey for the Leading Edge Teen Program, a hands-on, interactive experience built just for teens. This year, you’ll explore shared decision-making by focusing on three powerful skills: KNOWLEDGE (know what you want), CURIOSITY (ask the right questions), and ADVOCACY (speak up for your needs and goals). Through games, movement, group activities, and real conversations, you’ll practice tools that help you feel more confident navigating decisions, especially in healthcare settings like provider appointments, and in everyday life. You’ll build your own decision-making approach that you can actually use long after the program ends. And don’t worry, this isn’t all serious talk! Expect laughs, energy, surprises, and plenty of chances to connect with other teens. We’ll bring the fun and you just show up as you are. This session is part of the Leading Edge program, is presented by Lisa Elder and is sponsored by Pfizer.
Join BDASC and it’s members for an interactive and engaging opening session of celebrations and connections with the South Carolina and national bleeding disorders community.
Friday, June 12th
4:00pm: Registration Opens
5:30pm: Chapter Opening Remarks and Premier Sponsor Welcomes
6:00pm: Connect and Celebrate: A Community Kickoff
6:30pm: Dinner Buffet – Annual Chapter Awards and Scholarships
7:00pm: Chapter Recognition and Awards Ceremony
Mapping Your Journey: Building Skills for Shared Decision-Making
Join GutMonkey for an interactive, high-energy session designed to get you up, moving, and meaningfully connected with fellow community members. Using a hands-on “trail map” you’ll explore shared decision-making through the lenses of knowledge, curiosity, and advocacy. Together, we’ll map out how to ask better questions, seek specific answers, and actively engage in shared decision-making to create a clear, personalized plan you can use well beyond our time together. Expect plenty of fun along the way! Through games, community-building activities, and dynamic conversations, you’ll build practical skills while creating your own “trail map” for navigating decisions with confidence and intention. GutMonkey programs are known for helping people engage more thoughtfully, live their values more fully, and play more often. We’re excited to “hit the trail” with you! This session is part of the Leading Edge program and is sponsored by Pfizer.
The Basics of Innovative Therapies: What You Should Know, the Future of Treatments, and HTC Priorities
Presented by Dr. “Bobby” Duc Tran, MD, MSc, Chief Medical Officer Hemophilia of Georgia
This plenary session will provide a comprehensive, patient-centered overview of where bleeding disorders care stands today and where it is headed. Dr. Tran will guide attendees through the basics of innovative therapies while addressing common questions and concerns surrounding current and emerging treatment options.
The session will cover foundational education on bleeding disorders treatments, including approved therapies, emerging innovations, and clinical trials—highlighting ongoing research in von Willebrand disease (VWD). Dr. Tran will explain complex concepts such as how new therapies work in the body, rebalancing agents, safety considerations, and the benefits and limitations of different treatment approaches, presented in a clear and practical way for individuals and families. As research and innovation continue to rapidly evolve, staying informed has never been more important. This session is designed to empower patients, caregivers, and families with the knowledge needed to engage in meaningful, informed conversations with their own healthcare providers and care teams.
In addition, Dr. Tran will provide a broad overview of how Hemophilia Treatment Centers (HTCs) in our region are preparing for the future—sharing insights into what providers are monitoring, planning for, and anticipating as the treatment landscape continues to change. Attendees will gain a clearer understanding of today’s standards of care, progress and challenges in clinical trials, and regional HTC priorities in supporting individuals living with bleeding disorders now and in the years ahead.
Mild Matters: Mild Bleeding Disorder Conditions
This presentation will focus on why mild bleeds are no small matter and will acknowledge the unique challenges faced by mild bleeding disorder patients as a marginalized group in the bleeding disorders community. It will explore the various types of bleeds that can occur, the common reasons behind them, the importance of prompt treatment and empower individuals with knowledge on how and when to advocate for themselves to ensure they receive the best care possible. Presented by Morgan Cook, Sponsored by Takeda
Dream It, Do It: Empowered Goal Setting
This session is designed to help people and families living with bleeding disorders to thrive through empowered goal setting. Participants will learn how to set goals through self-examination of key focus areas including family, work or school, health, social and spiritual wellbeing, community building, and managing bleeding disorders. Participants will be able to identify their goals and priorities and develop a list of action items to achieve them. Presented by Phil Gattone, Sponsored by the National Bleeding Disorders Foundation
Pressure Points, Understanding Stress and Finding Relief
Stress touches everyone, but it can look and feel different depending on what you’re going through. In this session, we’ll explore what stress really is, how it shows up in our bodies and minds, and the many ways people experience it. We’ll also talk about common sources of stress—like job loss, finances, divorce, or managing a chronic condition—and share practical coping strategies to handle life’s challenges. Participants will leave with a better understanding of stress and simple, realistic tools to help manage it in daily life. Presented by Mosi Williams, Sponsored by the National Bleeding Disorders Foundation
Advocacy Today
What’s Happening Now and How You Can Make a Difference Presented by BDASC Advocacy Coalition
Activity with InfuCareRX
Join InfuCareRx and create a craft during this relaxing activity to end out the day! Sponsored by InfuCareRX
Aging as a Person with a Bleeding Disorders
While getting older is part of our lives, it often comes with new and unknown hurdles. This holds particularly true for the inherited blood and bleeding disorders community. This discussion based workshop will explore what we have learned about aging with a bleeding disorder, while providing a space for sharing lived experiences. You will be provided with resources and skills to navigate the unknown. Presented by Mosi WIlliams, Sponsored by the National Bleeding Disorders Foundation
Your Stories, Your Songs: A Hem Sessions Songwriting Experience
Through performances and hands-on songwriting activities, attendees will discover how music can help them express their own experiences and learn how to capture their own stories in song. Presented by Ben H., Sponsored by Sanofi
Mental Health Coping with Anxiety and Depression
This session provides an overview of anxiety and depression in Bleeding Disorders and strategies for coping with these issues. Presented by Susan J. Geraghty, RN, MBA, Sponsored by Novo Nordisk
Women with Bleeding Disorders
Women with bleeding disorders are often underrecognized and face delayed diagnosis, with their symptoms frequently dismissed. Historically, research and care have focused on men and hemophilia, despite von Willebrand disease being more common and significantly affecting women. Limited awareness and discomfort around menstruation—especially heavy menstrual bleeding, a key symptom—contribute to underdiagnosis and inadequate care. This program will cover the genetics and clinical differences of bleeding disorders in women, distinctions between carriers and diagnosed patients, and how symptoms evolve across life stages, supported by interactive personal stories and real-world conversations involving patients, families, healthcare providers, and insurers. Presented by Dori Smith, Sponsored by PromptCare
As we finish out the final events of our HELLO Conference, we will enjoy the time to connect with our families and friends out of the beautiful hotel terrace with a buffet dinner. Our HELLO raffles and evaluations will also be provided with kid’s activities on the terrace lawns for exploring.
Philip Gattone, President and CEO of The National Bleeding Disorders FoundationPhilip is an organizational leader and communicator who understands the dynamic of a national organization and a chapter network, and he recognizes the importance of a strong collaboration between the two, He’s skilled at long-term strategy but also knows the importance of adapting and shifting throughout challenging times. Phillip joined NBDF in February and is passionate about building capabilities with an open, empathetic leadership style that can help advance NBDF’s focus of innovative, inclusive research, education, and advocacy. Gattone was president and CEO of the Epilepsy Foundation of America (EFA) from 2012-2019.
Dr. “Bobby” Duc Tran, MD, MSc, Chief Medical Officer Hemophilia of Georgia
Morgan Cook, Community Education Specialist for TakedaMorgan joined the Takeda team in 2022. Being a part of Takeda’s Community Education Specialist (CES) team allows her to continue to give back to the bleeding disorders community, by playing an integral part in educating and supporting patients on their journey and living their best, healthy life. As a person with VWD, as well as marrying into a family of bleeders, Morgan believes this is just as much of a personal journey as it is for her to help others. Outside of work Morgan enjoys spending time with her husband and their fur baby, Cooper. Together they collect vinyl records and can often be found listening to their vastly dynamic collection. Morgan is also an avid reader and loves to repurpose and refinish furniture in her garage workshop!
Susan Geraghty, RN, MBA, Independent Health Care ConsultantSusan Geraghty is an Independent Health Care Consultant and was previously a Nurse Coordinator at University of Colorado Hemophilia and Thrombosis Center. She completed her Bachelor of Science in Nursing at University of North Carolina in Charlotte, North Carolina and her Master of Business Administration at University of Colorado in Denver, Colorado. Ms. Geraghty is a member of the Hemostasis and Thrombosis Research Society. She was also the former president of the Denver Chapter of the National Association of Orthopaedic Nurses and received the National Bleeding Disorders Foundation Nurse of the Year Award in 2005.
Mosi Williams, PsyD, LCSW, MSW, Licensed Clinical Social Worker for the UCSF Adult Hemophilia Treatment CenterMosi Williams, PsyD, has Severe Hemophilia A and an Inhibitor. Born and raised in Oakland, California, he has served in the Bleeding Disorders Community for the past 30 years, supporting summer camps and advocacy on the chapter, state, national and international levels. Mosi is currently a Licensed Clinical Social Worker for the UCSF Adult Hemophilia Treatment Center, and a board member for the Bleeding Disorders Foundation of Northern California and the Hemophilia Council of California.
Ben H., Sanofi Hemophilia PeerWithin a couple weeks of his birth, Ben’s mom noticed bruising all over his body. Concerned, his parents initiated a doctor’s visit that soon turned into blood testing and many consultations with a team of doctors and blood testing. Before he was six months old, Ben was diagnosed with hemophilia by a hematologist. Ben’s parents led unique lives as theatre owners and ski instructors—and they passed their active and optimistic outlook on to their five children. With their support, Ben learned to advocate for himself and stay active. Music became the most important form of self-expression for him, and he went on to perform professionally across the U.S.
Lisa Elder, CTRS, Gut Monkey Leading EdgeLisa Elder, CTRS, is a passionate facilitator and Recreational Therapist with over 13 years of experience in the medical and camping sectors. She is dedicated to empowering individuals with chronic illnesses and disabilities to actively participate in their communities while advocating for healthier and more inclusive environments. As a former camp director, Lisa has honed her skills in program development, leadership, and group facilitation. She earned dual degrees in Therapeutic Recreation and Psychology from the University of Tennessee, where she developed a strong foundation in understanding both the clinical and human-centered aspects of her field. Her commitment to fostering connection, accessibility, and joy is at the heart of everything she does, making her a driving force in the pursuit of equitable recreational opportunities for all.
Come learn about the current and future treatment therapies in the pipeline and supportive services available to our community as you explore and speak one-to-one with our sponsors in healthcare treatment therapies and services.
8:00am – 8:50am: Premier Sponsors Only
10:00am – 10:45am: All Levels Exhibiting
12:00pm – 1:30pm: Lunch Exhibiting all levels
2:30pm – 3:00pm: All Levels Exhibiting
4:00pm – 5:00pm: Final Exhibiting All Levels
