BDASC

About Us

Our Mission is to raise awareness for and advocate on behalf of persons with bleeding disorders and their families; provide education and supportive services; and promote ongoing research to improve the quality of life for those affected.

Missing above: James Whitmire, Robert Butler, Cristal Day, & Christine Evans

The 2022 Board of Directors

Our Board of Directors are responsible for the governance of the organization and work closely with our staff. The board members and executive director meet monthly to discuss the direction, governance, programs, services, and support for the organization and its members. We accept applications at any time and review as new board positions become available. If you are interested in applying for a board position or have any questions, please download the application or contact the Chapter at: info@hemophiliasc.org.

Join the Board of Directors today and make a difference in the lives of those we serve.

Professional Staff
Executive Director Ex-Officio Board Member NHF 2016 Award of Excellence, Advocate of the Year Sue.martin@hemophiliasc.org

As the Executive Director, Sue is the chief administrative officer for BDASC and as such, is responsible for the management and supervision of all operations in accordance with the intent of the board of directors, and consistent with the organization’s by-laws and state regulations.  She has been in Chapter services for over 26 years since the diagnosis of hemophilia in her three sons, with no known family history. She has a degree in Health and Human Services / Child Development, and prior to her time in chapter services, she worked with the developmentally challenged for the state of California and was a small business owner for 17 years. Sue has led the organization to receive several national awards which includes being recognized as a Five-Star Chapter of Excellence of the National Hemophilia Foundation (NHF), 2016 NHF Award of Distinction in Communications – Website Design and Outreach Video, NHF 2019 Award of Distinction Health Education and John Indence, Award of Excellence – Bleeding Disorders Awareness month, and the 2020 Hemophilia Federation of America Chapter Spotlight Award. Sue is a member and adviser to the Chapter Services Organization (CSO), which represents over 45 bleeding disorders organizations in the US, and is a member of several working groups of the National Hemophilia Foundation. Sue has a strong passion for advocacy and access to quality treatment care, and is a leading member of the Chapter’s State Advocacy Coalition. “I love to see individuals find their voice and watch them grow within their bleeding disorders journey. I am blessed to call this community my extended family”. Sue resides in Greer and enjoys boating and an outdoor lifestyle in her spare time with her husband, 5 children and 11 grandchildren.

gregwitul@hemophiliasc.org

Greg resides in Williamston, South Carolina with his wife and an ever-growing collection of house plants. Raised in the Finger Lakes Region of New York, Greg is a graduate of the University at Buffalo where he received a BA in Economic Geography and Niagara University where he received a MBA in International Business. In his fifteen years in the private sector, Greg has worked in a number of industries including technology transfer, economic development, publishing, and social media marketing. During the same time Greg was also involved in the voluntary sector sitting on boards of a library, a history museum, an economic committee, and a number of other cultural organizations. In 2020 Greg joined the organization just as the COVID-19 pandemic set in. “It has been an honor and privilege to work with this amazing community”. In his spare time, Greg enjoys hiking, hockey, historical research, and traveling.

Jeremy resides in Greenville with his wife and two children. He has been working with the Chapter as an Advocacy and Public Policy assistant and consultant for the past 5 years. He is also a member of the Chapter’s State Advocacy Coalition. Prior to working with the Chapter, Jeremy worked as a Senior Policy Analyst for The Council of State Governments in Atlanta, Georgia. Jeremy has a strong foundation in non-profit administration and personal commitment to public service and humanitarian work.

Jim has been the organization’s accounting and bookkeeping specialist for the past 6 years and is the owner of Lane Financial Services.

Richard is the organizations webmaster responsible for the maintaintance and design communications of the website. He is the owner of Blotter.com.

2022 Officers and Directors
2021 Board Member of the Year Moncks Corner, SC

Shelley resides with her husband in Moncks Corner, South Carolina, and has a young son with severe Hemophilia. Shelley is a Certified Occupational Therapy assistant. The family learned about their son’s diagnosis when he was 18 months old. They had no family history. In 2016, Shelley wanted to do more within the bleeding disorders community and joined the Chapter’s State Advocacy Coalition, and in 2017 she applied for a position on the Board of Directors. In her spare time, Shelley enjoys spending time with her boys and learning new crafts projects. “I have learned so much about bleeding disorders and have met so many wonderful people. Please feel free to reach out to me anytime”.

2020 Board Member of the Year
Columbia, SC

Aaron resides in Columbia, South Carolina with his wife and two sons. He works in the Information Technology department at BlueCross BlueShield of South Carolina and is currently an IT Manager. When their son was diagnosed with severe Hemophilia, the Smith’s decided to get involved with the Chapter. With no known family history, the Smith’s focused on learning as much as possible and being engaged in advocacy. Knowing that their experience has been drastically different than those before them, they have devoted themselves to ensure families affected by bleeding disorders can continue to obtain the help and resources needed to live in their new normal life. When not working or in Chapter events, Aaron enjoys spending time with his family, doing anything outdoors, and fixing things around the house.

Spartanburg, SC

Eric resides in Spartanburg, South Carolina and was born with hemophilia. He works in sales and logistics with a local oil and gas company, and is a graduate of the University of South Carolina. He is currently engaged to his fiancé and in their free time they enjoy spending time with their dogs, going to the beach, and trying out new restaurants.

Easley, SC

Cristal resides in Easley, South Carolina, is a lifelong resident of the Upstate. She has been teaching since 2006, and is currently a 3rd grade teacher. She is the mother of three amazing children. Her only son has severe Hemophilia and both her daughters are carriers. She is a symptomatic carrier as well. Her father had Hemophilia and died during the 80’s due to complications. Cristal serves as the Chapter’s State Advocacy Coalition Chairwoman. She has a desire to advocate for the bleeding disorders community everywhere she goes.  In her spare time, she loves to travel with her family on trips.

2016 Board Member of the Year 2013 (no term limits) Clinton, SC

Patricia resides with her son who has severe hemophilia in Clinton, South Carolina. She works in accounting. She has been associated with the Chapter as a member most her life. Her father had hemophilia and passed in 2018 at the age of 74, and was involved in one of the earliest gene therapy trials. Patricia has a strong desire for service and has served on the Board of Directors as treasurer for 8 years. She has a large family, many who are also affected by severe hemophilia. Patricia enjoys camping and sharing time with her family. 

2019 Board Member of the Year
Summerville, SC

Wendy resides in Summerville, South Carolina with her husband and young teenage son who has severe hemophilia. She works within the Urology healthcare field. The diagnosis of hemophilia was a surprise to Wendy as she had no family history of bleeding disorders. “It wasn’t until his diagnosis that we found out that I’m a symptomatic carrier as well as my mother, who has mild VWD”. Wendy and her family love attending the local Stingray hockey team on the weekends and their favorite Clemson football team. Wendy loves meeting new members within the community and reconnecting with old friends. 

Gaston, SC

Robert resided in Gaston, South Carolina and lives with severe hemophilia. He has a beautiful wife and 4 children.  Robert became involved in the chapter after learning the importance of being involved and has a strong desire to unite the seasoned men within the bleeding disorders community. Robert heads up the Chapter’s Blood Brotherhood Program while serving on board.   Robert has a background in art and graphics and enjoys spending time with his kids in his spare time.

Greenwood, SC

Joey resides and works as a family doctor in Greenwood with his wife and two children. Joey has a 1-year-old son with severe hemophilia and a 4-year-old son not affected. He serves on the board to advocate for his son and others with bleeding disorders so everyone can have the appropriate treatment and care they deserve. Joey enjoys hiking, running, bowling, rowing, board games, and spending time with his family.

Lexington, SC

Ursula resides in Lexington with her husband and 3 daughters. She is new to the board this year and is excited to be a conduit for the Spanish speaking members of the South Carolina Bleeding Disorders community. Ursula and her family relocated to the US from Costa Rica 6 years ago and are grateful to receive quality care for their family which is affected by von Willebrand Disease. Ursula is excited to unite the VWD community.

Columbia, SC

New this year to the board, Christine and her family reside in Columbia and relocated many years ago from their home country of Kenya. Christine has been a long-time member of the Chapter with family affected by severe hemophilia. She works as a Registered Nurse within the Mental Health field and has a strong desire to improve the mental health needs of the Bleeding Disorder community.

Irmo, SC

New this year to the board, James and his wife reside in Irmo, South Carolina. James has a daughter that currently attends Georgia State University as a doctoral candidate. He has a family history of Hemophilia with his maternal Grandfather, 2 brothers, nephews, and cousins that lived with severe Hemophilia. Within the Hemophilia community, James participated in an Ambassador Program that focused on improving access to care and diversity. He gained experience and exposure in understanding the challenges that individuals living with Hemophilia face each day. James would like to help with the outreach programming within the community and engagement. Over the past 25 years, James has served as President of his community’s HOA, Mentor with Richland /Lexington School District 5, Chairman of Richland/Lexington Airport District, and Managing Partner of Integrity Tax & Bookkeeping in Columbia. In his spare time, he enjoys traveling and golfing as regular as possible.

Effingham, SC

Cedric is a Leader in Training (LIT) on the Board of Directors, experiencing the work of board leadership. He resides in Effingham, South Carolina. He is currently a sophomore attending Limestone University and studying to attain a bachelor’s degree in Business Administration with a concentration in Economics, and minor in Healthcare Administration. He loves traveling in the mountains, watching documentaries, and meeting new people.

Past BDASC Presidents (1973-2021)

William Eichelberger

Betty Hammond

John Salter

Linda Robertson

George Dobbins

Pete Korn

Patty Korn

Tommy Williamson

Kim Wentzky

Darin Wentzky (completed Kim’s term)

Victor D. Fisher

Darin Wentzky

Rhonda Sumner

Frank Wentzky

Jim Hess

Mark Eichelberger

Lynn Warren

Phillip Lawson

Brandy Stewart

Gene Feather

Mark Eichelberger

Brandy Stewart

Victor D. Fisher

Vidalia McTeer

Suzanne (Sue) Martin

Lisa Bordelon

Mike Walden

Shelley Crisp

What We Believe…
We Believe in Diversity, Inclusion, and Healthcare Equity

To achieve the Bleeding Disorders Association of South Carolina’s (BDASC) mission and vision we believe we must be a diverse, equitable, and inclusive organization so that we can best address the health inequities, health disparities, and to support the needs of our community. 

For Diversity, we recognize and value the diverse experiences and backgrounds of our board of directors, staff, and those we serve. We strive to ensure that our leadership team is reflective of the communities that we serve.

With Equity we recognize inequities exist for marginalized groups and this directly contributes to disparities in access, treatments, and opportunities, for those we serve. We strive to create an environment where equity exists and our community thrives.

By Inclusion we recognize the importance of valuing and belonging. We strive to make space for policies, processes, spaces, and efforts where our members and community are valued and included.

These start with leadership, where we cultivate diverse leaders and visible representatives within all levels of the organization. We continue with hosting educational sessions on diversity, listening session inclusiveness, and celebrating events our members hold dear. We strive to create an environment that allows every member of the community to fully participate and contribute. All these tenets are typified by our logo. 

Our new logo has embracing graphics that wrap around the Blood Drop (like arms) showing our all-inclusive mission in serving all bleeding disorders, without any bias of race, gender, ethnicity, social and economics class. The way the arms cross gently in the center is a symbol of UNITY. The rounded tip of the blood drop characterizes warmth and kindness. The font is big and bold showing our strength and honor to be recognized without mistake as, BDASC. In the full design, the arms in the middle are hugging the A, representative of a group of people organized for a joint purpose. The A is joining together the arms with a connection and cooperative link between people with bleeding disorders and those living in the state of South Carolina. We are a people-focused organization and the arms graphic unites the left and right sides together. Wherever you are in South Carolina or whatever bleeding disorder you are affected with, you are united within the Bleeding Disorders Association of South Carolina.

Our Vision:

Our Vision is to to be recognized as a leading organization providing valued services; as ambassadors of public outreach to enlighten and foster an understanding of what matters most to those affected by hemophilia and bleeding disorders; and to be our community’s first choice in partnership to achieve their highest potential through empowerment, connection to their community, and being part of the solutions that affect them the most, until a cure is achieved. 

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BDASC Awards
 
2020 Hemophilia Federation of America National Chapter Spotlight Award

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals.

Member Organization Spotlight Award

HFA wishes to recognize a member organization with a true passion for service to their community. This award honors an organization that has created an environment within their membership that engages members, continually promotes education and consistently encourages self-advocacy.

Bleeding Disorders Association of South Carolina continually goes above and beyond for their members, especially given that they only have one staff person — Executive Director Sue Martin. Their South Carolina Hemophilia and Bleeding Disorders Advocacy Coalition has allowed BDASC to advocate across their large state.

Bleeding Disorders Association of South Carolina travels state-wide to meet with their members and provide services and events. They are known to be the most family-like chapter, greeting with hugs and support for each other while teaching self-advocacy with their ambassador programming, education and supportive services.

BDASC is proud to recognize this strong family-friendly organization. Way to go Sue Martin!

Partnership Chapter of Excellence Award

Bleeding Disorders Association of South Carolina is a proud recipient of the Partnership Chapter of Excellence Award in recognition of our organization’s participation in shared initiatives, trainings, and programs of NHF and our commitment to the relevance and vitality of our national chapter network as we work together to improve the lives of the bleeding disorders community.

Programs & Services Chapter of Excellence Award

Bleeding Disorders Association of South Carolina is a proud recipient of the Programs & Services Chapter of Excellence Award in recognition of our organization’s commitment to serving individuals affected by bleeding disorders through education, community, care, and connection. Visit our chapter’s Program & Services page to learn more about our variety of available programs & services.

Advocacy & Public Policy Chapter of Excellence Award by NHF

Bleeding Disorders Association of South Carolina has been awarded the prestigious Advocacy & Public Policy Chapter of Excellence Award by NHF in recognition of our commitment to advocacy and education initiatives both at the state and local level, aimed at improving the lives of those in the bleeding disorders community. Scoring in the top 15% of Chapters who participated in the review process, we are thrilled to have received this honor. We thank our legislators, treatment centers, stakeholders, families we serve, industry partners, and volunteers for helping us reach this great milestone. Learn how you can help make a difference—join our advocacy efforts today! 

Board Governance and Leadership

Bleeding Disorders Association of South Carolina has been awarded the prestigious Board Governance & Leadership Chapter of Excellence Award in recognition of our organization’s commitment to building strong, engaged, mission-focused leadership.”

 
Fundraising and Development

Bleeding Disorders Association of South Carolina is proud to have received the Fundraising & Development Chapter of Excellence Award in recognition of our commitment to the overall financial health of our organization and the implementation of a fundraising and development infrastructure that will continue to propel us in improving the lives of those in the bleeding disorders community through access to care, education, and advocacy opportunities. We were excited to score in the top 15% of all Chapters reviewed in the above categories. We thank the National Hemophilia Foundation for their partnership and leadership. Learn more about our fundraisers!

The 2019 Award of Excellence John Indence Award

The John Indence Award is a special award that recognizes a chapter’s exceptional work elevating advocacy issues, raising awareness, and funds during Bleeding Disorders Awareness Month through World Hemophilia Day and state-based advocacy season. The award is named in honor of John Indence, VP of Marketing and Communications at NHF, who was the architect of the Red Tie Campaign and was deeply committed to elevating public awareness of the Bleeding Disorders community. 

National Award of Excellence in Advocacy

We were proud to have our Executive Director, Sue Martin receive the National Award of Excellence in Advocacy at the 2016 National Hemophilia Foundation’s Annual Meeting in Florida. “Without the support of the Board of Directors and our incredible bleeding disorders community and their volunteer services, this award would never be possible. I am honored and proud to serve our Chapter, especially in our Collective Advocacy Efforts”. ~ Sue Martin

2017 NHF Annual Meeting Awards of Distinction

Health Education Award – Hemophilia of North Carolina and South Carolina- Teen Retreat ~ “The Carolina Crew”

This award recolonizes effective, creative program in health education that target groups such as women, parents, families, teens and young adults. Learn about our teen programming!

 
Communications Award- 2017 Communication Outreach Video

This award recognizes an outstanding communication vehicle that successfully distributes information to the bleeding disorder community.

BDASC Annual Gratitude Report 2020 Important Documents:

*All donations are tax-deductible and our Tax ID # is 23-7400632.

We Are Resilient!
                                            What We Embrace…

We embrace and celebrate diversity, equity, and inclusion; we strive to eliminate health inequities, health disparities, while we endeavor to become a leading organization in our community and the State of South Carolina. We embrace “People Centricity”, bringing our members and their families into the forefront of all we can accomplish together. We embrace research for a cure and support the ongoing efforts of our national organizations and companies striving to find better treatment therapies and one day a cure. 

Addressing Bias. To assure that individual and institutional bias do not exclude any members of our organization from full participation in all aspects of the organization’s management, programs, and activities on the same basis. 

Centering. We recognize that our organization includes everyone. However, we commit to centering and being particularly sensitive in our Diversity, Equity, and Inclusion work to the pain, frustration, and anger of anyone who believes, correctly or incorrectly, that he or she has been a victim of bias. 

Transparency. We commit to open, on-going communication to maintain an equitable and inclusive environment. We also commit to receiving and incorporating feedback when we fall short of that effort or lack clarity in our work. 

Accountability. We commit to holding ourselves and each other responsible for comments and actions that don’t sit right. We will use “I” statements and verbalize our feelings of discomfort in the moment. 

Specificity. We recognize that some policies and procedures may have unintended negative effects on our Diversity, Equity, and Inclusion efforts. We commit, therefore, to careful consideration of the consequences of any new policy or procedure and to evaluating existing policies and procedures in order to identify the impact of specific policies on all of our members. 

Realistic. We acknowledge the possibility that the process to address Diversity, Equity, and Inclusion might not immediately address all challenges that our organization, employees, and community could face, while also recognizing that those challenges may affect our ability to meet Diversity, Equity, and Inclusion goals. We also recognize that the environment outside of our work, such as systems that drive inequalities, will likely continue to evolve. We commit to being nimble in our efforts to address the most pressing needs of the current time.

Values. We understand our values and Standards of Behavior and will work to center those Values and Standards on equity and inclusion. We remain open to suggestions for changes to either value statements or standards of behavior.

Acceptance. We acknowledge and accept that the organization that exists at the beginning of this process might be different than the one we become at the end. We welcome this journey.

Empathy. We will listen to the stories of those who might have been marginalized and will not deny their lived experiences. Their stories are not subjective. Their stories are true, and likely reflect others’ experiences who are unable to be vocal or do not feel safe.

Individualism. We agree not to fall into the trap of tokenizing. We value individualism and acknowledge that one person does not represent the beliefs and actions or lived experiences of an entire group.

Our History

Bleeding Disorders Association of South Carolina (BDASC) is a 501 (C) 3 Non-Profit organization and is a Chapter of the National Hemophilia Foundation (NHF) and a Member Organization of Hemophilia Federation of America (HFA). In 2021, BDASC officially changes it name from Hemophilia of South Carolina (HSC) to Bleeding Disorders Association of South Carolina (BDASC) to reflect a more inclusive name of the people we serve and whom are part of our membership. HSC was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for 42 years existed as all-volunteer; providing programs and education, support, and advocacy for access to care at the state’s capitol. Today, BDASC serves all 46 counties in the state, currently providing education and support services to over 1,000 individual members and their families. BDASC provides the most current information and education in topics related to bleeding disorders, treatment therapies, health care access, and advocacy awareness. The organization today has one full time executive director, a full time development and communications coordinator, and an advocacy consultant, but relies on a strong volunteer base of its membership.  

National and Local Affiliations

BDASC is a Chapter of the National Hemophilia Foundation www.hemophilia.org

Bleeding Disorders Association of South Carolina is a registered non-profit organization of Greenville County and a member of the Greenville Chamber.

Let’s Make Bleeding Disorders part of the conversation.