The National Bleeding Disorders Foundation (formerly the National Hemophilia Foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
1230 Avenue of The Americas 16th Floor,
New York, NY 10020
Phone: (212) 328-3700 (800-424-2634)
Website: www.bleeding.org
National Bleeding Disorders Foundation Steps For Living
Prevent Complications of Bleeding Disorders
Website: Steps For Living
National Bleeding Disorders Foundation Women and Bleeding Disorders
Women and Bleeding Disorders is NBDF’s health initiative to address the critical issues faced by women with bleeding disorders.
Website: Women & Bleeding Disorders
National Bleeding Disorders Foundation Personal Insurance Toolkit
Choosing a health insurance plan that fits your needs is one of the most important things you can do if you have a bleeding disorder. Whether you are choosing a plan through your employer, a marketplace plan, or a managed care plan, you need to carefully consider what the plan offers, including how much you will pay, the size of the network, and prescription coverage.
Website: Personal Health Insurance Toolkit
Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.
820 First St. NE, #720
Washington DC 200032
Toll Free: (800) 230-9797
Phone: (202) 675-6984
Email: info@hemophiliafed.org
Website: www.hemophiliafed.org
Highlights: Patient Assistance Programs
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
1425 René Lévesque Blvd. W.
Suite 1010
Montréal, Québec
H3G 1T7 Canada
Phone: (514) 875-7944
E-mail: wfh@wfh.org
Website: www.wfh.org
The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.
1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
Phone: (617) 249-7300
Website: www.raredisease.org/
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The Hemophilia Alliance Foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.
Phone: (313) 657-5913
Website: www.hemophiliaalliancefoundation.org/
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The mission of the CDC’s Division of Blood Disorders is to reduce the mobility and mortality from blood disorders through comprehensive public health practice.
The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.
As a global charity, we focus on the well-being of others. We give you the freedom to live fearlessly, confident in the coverage we provide as the world’s most dependable medical identification and information network.
Medic Alert Foundation
2323 Colorado Avenue
Turlock, CA 95382
Phone: (888) 633-4298
Website: www.medicalert.org
Provides financial assistance to people who are diagnosed with chronic medical conditions.
Accessia Health
P.O. Box 5930
Midlothian, VA 23112
Phone: (800) 366-7741
Website: www.accessiahealth.org/
LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.
LA Kelley Communications, Inc.
65 Central Street
Georgetown, Massachusetts 01833 USA
Phone: (978) 352-7657
Email: info@kelleycom.com
Website: www.kelleycom.com
To support individuals and community members with chronic conditions through physical fitness, fitness education, advocacy, financial assistance of physical rehabilitation, and compassion.
Wingmen Foundation, Inc.
1425 René Lévesque Blvd. W. Suite 1010
Montréal, Québec
H3G 1T7 Canada
Phone: (514) 875-7944
E-mail: info@wingmenfoundation.org
Website: www.wingmenfoundation.org
The Resource Room provides current and searchable information on the basic science, clinical management, available laboratory and genetic testing, clinical trials, and global research initiatives for these very rare and heterogeneous coagulation disorders.
