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National Hemophilia Foundation

7 Penn Plaza, Suite 1204
New York, NY 10001

Phone: (212) 328-3700
Fax: (212) 328-3777

HANDI: NHF’s Info Resource Center
HANDI Phone: (800) 42-HANDI
HANDI Fax: (212) 328-3799
HANDI Emailhandi@hemophilia.org

Website: www.hemophilia.org

The National Hemophilia Foundation (NHF) is dedicated to finding cures for inheritable blood disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.


 
National Hemophilia Foundation Steps For Living
Prevent Complications of Bleeding Disorders
 

National Hemophilia Foundation Victory for Women

Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.


Hemophilia Federation of America

Hemophilia Federation of America
820 First St. NE, #720
Washington DC 200032

Toll Free: (800) 230-9797
Phone: (202) 675-6984
Fax: (972) 616-6211
Email: info@hemophiliafed.org

Website: hemophiliafed.org

Highlights:
Patient Assistance Programs

Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.


World Federation of Hemophilia

World Federation of Hemophilia
1425 René Lévesque Blvd. W.
Suite 1010
Montréal, Québec
H3G 1T7 Canada

Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: wfh@wfh.org

Website: www.wfh.org

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.


National Organization for Rare Disorders (NORD)

National Headquarters, CT Office

1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
Phone: 617-249-7300
Fax: 617-249-7301

Website:

www.https://raredisease.org/

The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

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The Hemophilia Alliance Foundation

Phone: 313-657-5913

Website: https://hemophiliaalliancefoundation.org/

The Hemophilia Alliance Foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.

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Center for Disease Control
The mission of the CDC’s Division of Blood Disorders is to reduce the mobility and mortality from blood disorders through comprehensive public health practice.

Patient Notification System

The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.


Medic Alert

Medic Alert Foundation
2323 Colorado Avenue
Turlock, CA 95382

Phone: (888) 633-4298

Website: www.medicalert.org

As a global charity, we focus on the well-being of others. We give you the freedom to live fearlessly, confident in the coverage we provide as the world’s most dependable medical identification and information network.


Patient Services Incorporated

Patient Services, Inc. (PSI) is the “ground breaking” 501(c)(3) non-profit, charitable organization of its kind. Over two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and copayments.


LA Kelley Communications

LA Kelley Communications, Inc.
65 Central Street
Georgetown, Massachusetts 01833 USA

Phone: 1 (978) 352-7657
Fax: 1 (978) 352-6254
Email: info@kelleycom.com

Website: www.kelleycom.com

LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.

CK Colburn Keenan Foundation, Inc.
 

The Colburn Keenan Foundation is a charitable organization dedicated to improving the health and well being of individuals and families living with chronic illnesses, with priority placed on those living with bleeding disorders.


Wingmen Foundation, Inc.

Wingmen Foundation, Inc.
1425 René Lévesque Blvd. W. Suite 1010
Montréal, Québec
H3G 1T7 Canada

Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: info@wingmenfoundation.org

Website: www.wingmenfoundation.org

To support individuals and community members with chronic conditions through physical fitness, fitness education, advocacy, financial assistance of physical rehabilitation, and compassion.


Rare Coagulation Disorders Resource Room
 
The Resource Room provides current and searchable information on the basic science, clinical management, available laboratory and genetic testing, clinical trials, and global research initiatives for these very rare and heterogeneous coagulation disorders.

Foundation for Women and Girls with Blood Disorders
Website: www.fwgbd.org
 
The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and adolescent girls with blood disorders are correctly diagnosed and optimally treated and managed at every life stage.

South Carolina Hemophilia Program
 
The South Carolina Hemophilia Assistance Program (HAP) is a state-funded program provided by the Department of Health and Environmental Control (DHEC) in partnership with Patient Services, Inc. (PSI). The HAP program was established to assist state residents with Hemophilia and von Willebrand Disease. The program offers insurance case management and financial assistance for private health insurance costs as well as co-payment assistance. The program was established to assist eligible patients with obtaining health insurance by funding premiums and co-pays. This insurance will cover blood disorders healthcare needs as well as comprehensive and preventive services. 
 
Bleeding Disorders Association of South Carolina offers opportunities for charitable donations, grants, and sponsorship opportunities to support the bleeding disorders community of South Carolina. We wish to take this opportunity to thank everyone for their past considerations and support, and for the opportunity to continue to work with you today and in the future. Your support allows us to support our mission of services, education, support services, and advocacy initiatives to individuals in our state that are affected by hemophilia, von Willebrand disease, and other rare bleeding disorders. Thank you for your commitment to our mission!