1230 Avenue of The Americas 16th Floor,
New York, NY 10020, United States
Phone: (212) 328-3700 (800-424-2634)
Fax: (212) 328-3777
The National Bleeding Disorders Foundation (formerly the National Hemophilia Foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Women and Bleeding Disorders is NBDF’s health initiative to address the critical issues faced by women with bleeding disorders.
Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
National Headquarters, CT Office
1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.
The Hemophilia Alliance Foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.
Website: www.cdc.gov Facts
The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.
Medic Alert Foundation
2323 Colorado Avenue
Turlock, CA 95382
Phone: (888) 633-4298
As a global charity, we focus on the well-being of others. We give you the freedom to live fearlessly, confident in the coverage we provide as the world’s most dependable medical identification and information network.
P.O. Box 5930
Midlothian, VA 23112
Provides financial assistance to people who are diagnosed with chronic medical conditions.
The Colburn Keenan Foundation is a charitable organization dedicated to improving the health and well being of individuals and families living with chronic illnesses, with priority placed on those living with bleeding disorders.
Wingmen Foundation, Inc.
1425 René Lévesque Blvd. W. Suite 1010
H3G 1T7 Canada
Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
To support individuals and community members with chronic conditions through physical fitness, fitness education, advocacy, financial assistance of physical rehabilitation, and compassion.