Programs

January

• 8^th – Advocacy Coalition Call
• 10^th – Legislative Breakfast, Columbia
• 12^th – Community Connections & Engagement Outreach – Camp Readiness
• 16, 23, 30^th – HFA IMPACT Workshop

• 18^th – Bleeding Disorders Advisory Committee (Industry) Meeting, Greenville

• 19^th – Gene Therapy Dinner Engagement
• 20^th – Board of Directors 2023 Annual Strategic Planning Summit, Greenville
• 25-28^th – NBDF HEDI Summit

February

• 1^st – Community Connections & Engagement Outreach – Camp Readiness
• 5^th – Advocacy Coalition Call

• 10^th – Board of Directors Meeting

• 23^rd – Community Connections & Engagement Outreach – Black / African American Health Equity
• 27 – 28^th – State Advocacy Training / Legislative Days

• 29^th – Rare Disease Day

March Bleeding Disorders National Awareness Month

• 5^th – Advocacy Coalition Call

• 6 -8^th – NBDF Washington Days
• 9^th – Board of Directors Meeting
• 22 – 24^th – Adult Connections Symposium, Greenville

April

• 1^st – Advocacy Coalition Call

• 11 – 13^th – HFA Symposium – Indianapolis

• 13^th – Board of Directors Meeting
• 17^th – World Hemophilia Day Celebration
• 20th – WHD Celebration

• 26^th – BDASC Academic Scholarship Program Deadline
• 27th – BDASC Welcome at Camp Courage Family Camp
• 29 – May 1^st – CSO National Meeting, New Orleans, Louisiana

May

• 6^th – Advocacy Coalition Call

• 11^th – STEP for Bleeding Disorders
• 14^th – Bleeding Disorders Advisory Committee (Industry) Meeting
• 18^th – Board of Directors Meeting
• 25^th – Community Connections & Engagement Outreach – Women, VWD, Rares
• 31st – Let’s Talk Mental Health

June

• 3^rd – Advocacy Coalition Call
• 8^th – Board of Directors Meeting

• 21 – 22^nd – BDASC Annual Meeting & HELLO Conference
• 23 – 28th – Camp Courage Kids (Greenville HTC) BDASC Ice Cream Social – June 25th

July

• 1^st  – Advocacy Coalition Call
• 8 – 13th – Camp Burnt Gin
• 13^th – Board of Directors Meeting
• 18 – 21^st – Teen Camp BDASC / BDFNC (TBD)
• 26 – Educational Branded Dinner
• 27 – Aug 1 – Teen Camp, Camp Courage (Greenville HTC)

August

• 1st – Community Empowerment and Connections Event
• 5^th – Advocacy Coalition Call
• 10^th – Board of Directors Meeting

September

• 6^th – Community Connections & Engagement Outreach, Hispanic Community
• 9^th – Advocacy Coalition Call
• 10^th – Bleeding Disorders Advisory Committee (Industry) Meeting

• 12 – 15^th – NBDF Bleeding Disorders Conference (Atlanta)
• 14^th – Board of Directors Meeting

• 27^th – Par for the Clot Golf Fundraiser

October

• 7^th – Advocacy Coalition Call

• 12^th – Board of Directors Meeting

• 18 – 20^th – Potential Fall Gathering (TBD)

November                           

• 4^th  – Advocacy Coalition Call
• 9^th – NHF BDASC Stakeholders Meeting
• 16^th – Board of Directors Meeting
• 18 – 21^st – NBDF Chapter Leadership
• 30^th – Community Connections & Engagement Outreach, Teens Transitioning

December

• 1^st – Advocacy Coalition Call
• 14^th – Winterfest State Meeting (Columbia)

Additional Events in 2024 (dates to come soon)

• NOW Conference, National Outreach von Willebrand Disease (vWD)
• NHF Insurance and Reimbursement Conference
• SC Together Non- Profit Summit Conference
• HTC / Chapter Regional Technical Meeting

Support Group Connectivity Events (planned and additional to come)

• BDASC – YES: Young Families: Empowerment and Support Programming
• BDASC – Men’s Programming
• BDASC – Women’s CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming
• BDASC Teen Programming Support Group
• VWD and Ultra Rare Support
• Spanish Community Support
• Black / African American Community Support