BDASC’s 2025 Advocacy Wrap-Up
Each year, we kick off our Bleeding Disorders Awareness Month campaign with an impactful advocacy event in Columbia. Our State Advocacy days is an annual event to gather together to raise our voices and make meaningful
Each year, we kick off our Bleeding Disorders Awareness Month campaign with an impactful advocacy event in Columbia. Our State Advocacy days is an annual event to gather together to raise our voices and make meaningful
Our Ambassador of the Year Award Winner, Shay, reminds us of the power of advocacy and the strength we each hold when we use our voice to share our stories. Her message is a powerful call to action: that change begins when we speak our truth, speak from the heart, connect, and lead with courage.
The National Bleeding Disorders Foundation defines bleeding disorders as a group of disorders that share the inability to form a proper blood clot. They are characterized by extended bleeding after injury, surgery, trauma or menstruation.
We have many programs, educational opportunities, and events to help individuals and their families connect to the South Carolina bleeding disorders community. BDASC also provides networking and support services.
Advocacy is a key component of our mission at BDASC. It is also important to those affected by bleeding disorders in assuring health care needs are being met especially when living with a rare and chronic, lifelong disorder.
The Bleeding Disorders Association of South Carolina (BDASC) welcomes you to register with our non-profit organization allowing us to keep you informed while providing programs and services to you and your family. Become a member today and join our community focused and patient driven organization.
Our Official Newsletter is published quarterly by Bleeding Disorders Association of South Carolina as an informational service for its members, friends, and affiliations of South Carolina’s bleeding disorder community. The News Infusion provides communication connections, education, and advocacy awareness. READ >
We’re bringing the community together for an evening of connection, conversation, and fun in Myrtle Beach! We’ll kick things off with a delicious dinner at Anchor Bar, followed by a round of mini golf at Captain Hook’s Adventure Golf. This event is sponsored by Takeda.
Raise Your Voices at FAMS 2025! Where Health Meets Policy, and Voices Drive Action!
Save the date for our Fall Advocacy & Medical Symposium in Myrtle Beach! Registration will be available soon.
Come spend a weekend with friends, new & old! We’re planning a terrific weekend full of fun activities and sessions that will challenge you, inform you, and inspire you. Share your interests, passion, and ideas about how you can make a difference for yourself and in our community.
The Bleeding Disorders Association of South Carolina will host it annual golf tournament fundraiser, the Par Fore The Clot on September 26, 2025. Players will enjoy a wonderful day of golf, food, fun, and competition.
Join the South Carolina Community and we come together virtually to connect, empower, and learn from experts in the fields of bleeding disorders and lived experienced experts” (LEEs).
Join us for our next Tee-Off Committee Meeting at 7PM! Check out how you can get involved in the Par Fore the Clot Charity Golf Tournament.
BDASC, formerly Hemophilia of South Carolina, was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for 42 years existed as all-volunteer; providing programs and education, support, and advocacy for access to care at the state’s capitol. Today, BDASC serves all 46 counties in the state, currently providing education and support services to over 1000 individual members and their families now in 39 counties. BDASC provides the most current information and education in topics related to bleeding disorders, treatment therapies, insurance, and advocacy. BDASC relies on a strong volunteer base of it’s board of directors and members. Without our volunteers, we could not serve our mission.
Mental health care matters. It is important to maintain our mental health as well as we maintain our physical health. Learn about some resources and tools from National Bleeding Disorder Organizations, National Mental Health Organizations, as well as some South Carolina focused groups to help support your mental well-being.
Bleeding Disorders Association of South Carolina community members had a direct voice in the development of the priorities for research by participating in focus groups, hosting community voices summits, and BDASC executive director, Sue Martin participated throughout the entire project and is a co-author of the final published manuscript of the National Research Blueprint.
There are many ways you can make in a difference in the lives of those affected by bleeding disorders.
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Bleeding Disorders Foundation and a member organization of Hemophilia Federation of America.
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