In a major victory for patients who depend on prescription drugs, Judge John D. Bates of the U.S. District Court for the District of Columbia struck down a Trump administration federal rule that allowed health insurers to not count drug manufacturer copay assistance towards a beneficiary’s out-of-pocket costs.
The National Hemophilia Foundation defines bleeding disorders as a group of disorders that share the inability to form a proper blood clot. They are characterized by extended bleeding after injury, surgery, trauma or menstruation.
We have many programs, educational opportunities, and events to help individuals and their families connect to the South Carolina bleeding disorders community. BDASC also provides networking and support services.
Advocacy is a key component of our mission at BDASC. It is also important to those affected by bleeding disorders in assuring health care needs are being met especially when living with a rare and chronic, lifelong disorder.
The Bleeding Disorders Association of South Carolina (BDASC) welcomes you to register with our non-profit organization allowing us to keep you informed while providing programs and services to you and your family. Become a member today and join our community focused and patient driven organization.
Published quarterly by Bleeding Disorders Association of South Carolina as an informational service for its members, friends, and affiliations of South Carolina’s bleeding disorder community. The News Infusion provides communication connections, education, and advocacy awareness. READ >>
Join BDASC for a community engagement event in Summerville! Attendees will learn how optimism contributes to resilience and has benefits in important domains of life including relationships, health and performance. Attendees will learn six optimism strategies to build an optimistic mindset while enjoying dinner and conversations with friends!
Register today!
Please join us as we prepare for a very active legislative session in 2024 and learn how your voice will help provide access to treatment for all in South Carolina who live with bleeding disorders.
Join us as we come together for a day out in Columbia. We will gather at Liberty Tavern for a lunch and learn and then travel tom The Plant House for a fun activity. Learn more and register today to join us. Limited space is available.
7:00PM
Log in for some community conversations and get to know fellow members in your region of the state! Register today
7:00PM
Join us as we continue our conversations and work to remove barriers to health inequity for the bleeding disorders community in South Carolina. Our HEDI working committee is open to all who have an interest in advancing our HEDI mission. Registration is required.
7:00PM
We are excited to join the South Carolina VWD Community, Ultra Rare & Platelet Disorders Community for a virtually gathering of conversations and support! Join us to see what we are planning!
Register today!
BDASC, formerly Hemophilia of South Carolina, was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for 42 years existed as all-volunteer; providing programs and education, support, and advocacy for access to care at the state’s capitol. Today, BDASC serves all 46 counties in the state, currently providing education and support services to over 1000 individual members and their families now in 39 counties. BDASC provides the most current information and education in topics related to bleeding disorders, treatment therapies, insurance, and advocacy. BDASC relies on a strong volunteer base of it’s board of directors and members. Without our volunteers, we could not serve our mission.
Mental health care matters. It is important to maintain our mental health as well as we maintain our physical health. Learn about some resources and tools from National Bleeding Disorder Organizations, National Mental Health Organizations, as well as some South Carolina focused groups to help support your mental well-being.
Bleeding Disorders Association of South Carolina community members had a direct voice in the development of the priorities for research by participating in focus groups, hosting community voices summits, and BDASC executive director, Sue Martin participated throughout the entire project and is a co-author of the final published manuscript of the National Research Blueprint.
There are many ways you can make in a difference in the lives of those affected by bleeding disorders.
LEARNING TO BECOME RESILIENT IN 2021
WE LEARNED A LOT IN 2021 ABOUT BEING RESILIENT AND CONTINUING OUR MISSION EVEN IN THE MOST CHALLENGING OF TIMES.
The opening session of the Inaugural 2021 Bleeding Disorders Medical Conference, April 23-24, 2021 provided a quick overview of Hemophilia of South Carolina, now known as Bleeding Disorders Association of South Carolina, who they are, what they do, the advocacy work within the organization, and the impact of living with a bleeding disorder.
2022 Par for the Clot Fundraiser helps to raise the awareness for bleeding disorders.
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Hemophilia Foundation and a member organization of Hemophilia Federation of America.
See our brochure (PDF) to learn more: DOWNLOAD
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