FOR IMMEDIATE RELEASE Columbia, SC — January 14, 2026 South Carolina Hemophilia and Bleeding Disorders Advocacy Coalition Hosts 2026 Legislative Breakfast at the State Capitol By James Romano and Sue Martin On Wednesday, January 14,
What a year! From incredible collaborations to community milestones, 2025 was one for the books. Let’s rewind the highlights, celebrate our journey, and get ready for an even bigger 2026! As 2025 comes to a close, we’re grateful for every connection, every milestone, and every moment shared. Here’s to celebrating what we built together — and to new adventures in 2026.
The National Bleeding Disorders Foundation defines bleeding disorders as a group of disorders that share the inability to form a proper blood clot. They are characterized by extended bleeding after injury, surgery, trauma or menstruation.
We have many programs, educational opportunities, and events to help individuals and their families connect to the South Carolina bleeding disorders community. BDASC also provides networking and support services.
Advocacy is a key component of our mission at BDASC. It is also important to those affected by bleeding disorders in assuring health care needs are being met especially when living with a rare and chronic, lifelong disorder.
The Bleeding Disorders Association of South Carolina (BDASC) welcomes you to register with our non-profit organization allowing us to keep you informed while providing programs and services to you and your family. Become a member today and join our community focused and patient driven organization.
Our Official Newsletter is published quarterly by Bleeding Disorders Association of South Carolina as an informational service for its members, friends, and affiliations of South Carolina’s bleeding disorder community. The News Infusion provides communication connections, education, and advocacy awareness. READ >
Join the Bleeding Disorders Association of South Carolina as we prepare for National Bleeding Disorders Awareness Month this March! Our Annual Advocacy & State Legislative Days is a powerful opportunity to raise awareness and advocate for access to care.
We’re thrilled to invite our adult members, ages 18 and up (with an adult 21+), who are living with bleeding disorders, are carriers of a genetic bleeding disorder, or are caretakers of someone affected by a bleeding disorder to come together for a truly special weekend!
Join us as we come together in unity and EMBRACE the opportunities of learning, connecting, sharing, and networking within the bleeding disorders community.
Camp CoAg is a 4-day summer camp held in Eastover, South Carolina at Camp Cole, created for children and teens diagnosed with bleeding disorders and their siblings. Open to campers ages 5–18 yrs, Camp CoAg offers a safe, supportive, and fun-filled environment where campers can build friendships, confidence, and lasting memories.
Save the date for Bleeding Disorders Awareness Month! Check out what we have in store in celebration!
Join the South Carolina Community as we celebrate VWD Awareness Day by coming together for a Sunday afternoon support group activity and dinner presentation. Our dinner presentation will be brought to us by Takeda.
Join the South Carolina Community as we celebrate World Hemophilia Day by coming together for an evening dinner presentation and community activities. Our event is brought to us by Sanofi.
Save the date for the 2026 STEP for Bleeding Disorders 5K Walk/Run & Spring Fest! Learn more today!
Save the date to celebrate Women Who Bleed Awareness Day! We’ll be hosting an educational zoom meeting. More information to come soon!
Save the date for our virtual 2026 STEP for Bleeding Disorders Kick Off Party! Join us for a STEP Kahoot!
BDASC, formerly Hemophilia of South Carolina, was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for 42 years existed as all-volunteer; providing programs and education, support, and advocacy for access to care at the state’s capitol. Today, BDASC serves all 46 counties in the state, currently providing education and support services to over 1000 individual members and their families now in 39 counties. BDASC provides the most current information and education in topics related to bleeding disorders, treatment therapies, insurance, and advocacy. BDASC relies on a strong volunteer base of it’s board of directors and members. Without our volunteers, we could not serve our mission.
Mental health care matters. It is important to maintain our mental health as well as we maintain our physical health. Learn about some resources and tools from National Bleeding Disorder Organizations, National Mental Health Organizations, as well as some South Carolina focused groups to help support your mental well-being.
Bleeding Disorders Association of South Carolina community members had a direct voice in the development of the priorities for research by participating in focus groups, hosting community voices summits, and BDASC executive director, Sue Martin participated throughout the entire project and is a co-author of the final published manuscript of the National Research Blueprint.
There are many ways you can make in a difference in the lives of those affected by bleeding disorders.
