The Coalition’s Mission: To Empower the Hemophilia and Bleeding Disorders Community in South Carolina to speak to public and private decision-makers about improving Access to Quality and Affordable Health Care and Treatment.
We are thankful to the Advocacy Coalition Committee Members who came together from all regions throughout the state and nationally to form the South Carolina Hemophilia and Bleeding Disorders Advocacy Coalition (SCHBDAC). Our commitment to the Bleeding Disorders Association of South Carolina and all South Carolinians affected by bleeding disorders is to improve access to Quality Care and Treatment. Improving lives is our mission.
We are very grateful to our 2023 Sponsors for supporting our advocacy program and the NHF State Based Advocacy Coalition!
Novo Nordisk, INC. (Founding sponsor), Bayer Healthcare, CSL Behring, Genentech, The Hemophilia Alliance, Sanofi Genzyme, and Takeda for their support of the National Hemophilia Foundation State Based Advocacy Coalition (SBAC) program.
Learn about them here by clicking on their logos in this program!
Bleeding Disorders Association of South Carolina is a proud recipient of the Advocacy & Public Policy Chapter of Excellence Award of the National Hemophilia Foundation in recognition of our commitment to advocacy and education initiatives both at the state and local level, aimed at improving the lives of those in the bleeding disorders community. Learn how you can help make a difference—join our advocacy efforts today!
A vital component of the Advocacy Coalition is the Ambassador Program, which comprises volunteer members in leadership positions tasked with establishing a strong grassroots network of bleeding disorders advocates throughout the state. Ambassadors serve as liaisons between the Advocacy Coalition and the public, focusing on increasing awareness of rare bleeding disorders and the challenges individuals and their families affected by them face. They also function as “county captains,” meaning that they serve as a regional or county resource and connection for people who have been, or have family members who have been, newly diagnosed, or who, for whatever reason, simply need information about issues (e.g., school nursing; educational resources; clinics and hospitals) relevant to bleeding disorders, particular to that county or region of the state. If you would like to be put in touch with someone in your county who may be a helpful source of information and support to you and your family, please contact the chapter, and we will put you in touch with someone who can help.
April Baird representing Laurens County
Virginia Snead representing Laurens County
Martha Breitweiser representing Pickens County
Mike and Ann Ravan representing Spartanburg County
Mike Walden representing Union County
Felicia Alexander representing Greenville County
Meggan Burton representing Greenville County
Eric Dunton representing Spartanburg County
Michelle Jackson representing Abbeville County
Corrie Snider representing Spartanburg County
Mandy Weber representing Greenville County
Brenda and Leroy Garrett representing Laurens County
Dana Gurley representing Anderson County
Ric Martin, representing Greenville County
Taylor Upton, representing Spartanburg County
Christine Evans representing Lexington County,
Jameelah Malcolm representing Lexington County
Gene Wilson representing Lexington County
Ward and Marilyn Keith representing Lexington County
Tiffany Maness representing Richland County
Brantley Smith representing Richland County
Mattie Watkins representing Richland County
Bonnie Phifer representing Richland County
Jean Ford representing Sumter County
Edna Rabb representing Fairfield County
Holly Penfield representing Lancaster County
Demetrio Lopez and Miguelina Huerta representing Newberry County
Rolando Lopez and Sarali Hcosta representing Newberry County
James and Waltene Whitmire representing Richland County
Rimica Brown representing York County
Kristin Shelton, representing Fairfield / Richland County
Paige Hughes representing Berkeley County,
Laurie Thompson representing Berkeley County
Mike Maloy representing Dorchester County
Tim Swanburg representing Dorchester County
Woody Ford representing Horry County
Samantha Javorka representing Dorchester County
15th – Advocacy Coalition Call
Additional Advocacy Events in 2023 – to be scheduled throughout the year!
Patient Advocates and Stakeholders Meet In Greenville To Discuss 2020 Outlook
By Jeremy Williams
On Friday, November 8, more than 30 advocates, healthcare professionals, policy experts, government officials, and industry representatives met in Greenville to continue ongoing discussions begun at HSC’s “South Carolina Bleeding Disorders Challenge” forum in 2018, regarding access to healthcare for persons with bleeding disorders living in the state. The day kicked off with heartfelt and moving personal stories from four HSC advocacy members: Cristal Day (Advocacy Coalition chair), Jameelah Malcolm, Eric Dunton, and Meggan Burton (Advocacy Ambassadors). Each of them offered compelling life lessons involving their (and their family members’) persistence in confronting the challenges of living with a bleeding disorder. MORE>>
Government Officials, Medical & Policy Experts, and Patient Advocates Meet in Columbia for Bleeding Disorders Forum
(Greenville, South Carolina) — On Thursday, August 16, and Friday, August 17, 2018, approximately 47 policy experts, government officials, medical professionals, and bleeding disorders advocates, met in Columbia, South Carolina, to address access to healthcare issues at a forum titled The South Carolina Challenge, coordinated by Hemophilia of South Carolina (HSC) and their Advocacy Coalition. MORE>>