The Bleeding Disorders Association of South Carolina’s “CARE PROGRAM” exists to support and empower women and girls who are affected by a bleeding disorders whether they have been diagnosed as having a bleeding disorder, are a caretaker of someone with a bleeding disorder; child or spouse/significant other, brother or sister, or they themselves are carriers of a genetic bleeding disorder. The objectives of the program include but are not limited to:
(If there is more then one person in your group, all participants must register separately)
Space is limited with a deadline date of February 10th.
Join the South Carolina community ladies for a fun and interactive afternoon / evening event to enhance upon building our ladies support community. We will celebrate our accomplishments and share our personal stories while providing support to one another within our bleeding disorders journeys. We will enjoy hearing from our Common Factors speaker and you will be able to join in the conversations. Food, drink, and our 2022 vision board (DIY) project will all be included for you to take home! Give back to yourself and become creative while doing so! You can select from several choices: Daily Affirmations, Your Potential is Endless, Manifest Your Dreams, I am Enough, or our special BDASC quote! Register soon as this support group event had limited space.
This Support Group Activity is being provided in sponsorship with CSL Behring and BDASC! Space is limited and the deadline to register is February 10th. We hope you will join us!
200 E. Washington Street, Greenville, SC 29601
Friday: March 25 – 5:00pm: Opening welcomes, connections, reception and dinner presentation with evening fun activity
Saturday: 9am – 5pm: Education, breakouts, and activities – dinner downtown
Sunday: 9-11:30am – Wrap-up discussions
9:00am- Keynote Presentation
10:30- Speaker Presentation
1:00 – 2:00pm – Breakouts
2:30 – 3:30pm – Breakouts
4:00 – 5:00pm – Group Activity
6:30 – 8:00pm – Dinner downtown Greenville
Registration is open: Limited space is available
Deadline to register March 2nd – for overnight rooming
Included: Hotel rooms, meals, educational materials, and activities. Rooms will be reserved on a first come basis for traveling guests outside Greenville County.
Friday night rooms available with limited Saturday night stays included for those traveling distances and staying for the entire conference. This conference is completely free for eligible attendees. Join us!
Friday Opening Night: 8:00 – 10:00pm: Evening Activity / Women’s Connecting with Ribbons and Burlap Easter or Spring Art Project https://www.facebook.com/burlapandribbons/
Saturday: 4:00-5:00pm: Relaxing with Hope and Yoga! Learn what a little Yoga in your life can do and take home a commemorative mat just for trying!
Join us for a special final night dinner gathering out on the town in Greenville’s beautiful downtown!
We invite you to join us for our first conference intended for women who are affected by hemophilia, Von Willebrand Disease, or other rare bleeding and platelet disorders. This includes; women who are carriers of genetic bleeding disorders, are caretakers of loved ones with bleeding disorders, and women with daughters who are obligate carriers. Join us for conversations and education providing support, friendship, and understanding, while learning how to advocate for women’s health care treatment needs. For our VDW community, come learn and understand the new guidelines for VWD management, treatment, and diagnosis. There is a great deal of movement in understanding and supporting women who bleed and we invite you to share your voice, your experiences, and concerns while participating in addressing the needs of our “Women Who Bleed”. This weekend is for adult women with no onsite child care offered. Financial stipend assistance for childcare may be available for those who request this assistance to attend. We believe this is a time to celebrate and concentrate on our women and we are planning a wonderful weekend for you! Updates on sessions and speakers to come soon!
Women Who Bleed (Sponsored by Bayer)
Session empowers women to know the meaning of their hemophilia and bleeding disorders carrier status and understand bleeding and treatment options. The program focuses on going beyond that carrier status, getting tested, knowing that women may need to treat depending on their factor levels.
Mind, Body, Heart, Connection: Women’s Mental Health (Sponsored by HFA)
This session concentrates on taking a holistic approach and how all these functions work together supporting attendees to create a more balanced life and empowers attendees to learn to build coping strategies and take control of their health, body, and mind for a healthy lifestyle.
Reproductive Health, Menstruation, and Menopause (Sponsored by NHF)
Reproductive health, menstruation, and menopause are vital topics in the lives of girls, women, and those who have the potential to menstruate. Yet, our conversations about these within the inherited blood disorder community have been sparse. It’s time to change. This workshop will provide a deeper dive into physiological components of these, highlight implications for bleeding disorders, and provide essential skills and resources to the participants.
Carrier Guilt (Sponsored by HFA)
Join Anna Bell as she facilitates a rap session among attendees about the feelings women face and their concerns about possibly passing along a bleeding disorder. This session is an open conversation for women to share, connect, and support one another on being a carrier of a genetic bleeding disorder.
We all have “Common Factors” (Sponsored by CSL Behring)
Here from our Common Factor Advocate about living with a bleeding disorder or being a caregiver and making yourself a priority. Learn too how to laugh through the stress.
VWD Overview (Sponsored by Grifols)
This interactive program will provide a history of VWD, its diagnosis, laboratory testing and classification of subtypes, as well as the current trends in the management of VWD, including the consensus data on reproductive issues.
VWD Guidelines: What They Mean for You -New VWD Guidelines and Management (Sponsored by NHF)
In 2021, the new VWD guidelines on diagnosis and treatment were published. In this workshop, participants will learn more about the innovative international development and the most important changes. But even more so, participants will learn what these guidelines mean for them and how to use these as a foundation for shared decision making to advocate for their own best care.
Women Matter in Bleeding Disorders (Sponsored by Takeda)
Women with bleeding disorders face unique challenges that are often unrecognized or underappreciated. Understanding some of the special challenges faced by women with bleeding disorders and identify options for emotional support within the community.