We are excited to invite the South Carolina members of the bleeding disorders community to join us for our statewide educational and community connections, Annual Family Advocacy Camp. We are hosting family camp this year in our host hotel as we wait for our 2025 camp venue. We will enjoy a family camp theme with activities and educational sessions for everyone. Our Medical Symposium track will host our Industry Forum during our morning breakout sessions with companies of your choice to choose from to discover and learn about their product pipelines and any new innovative treatment options available to treat bleeding disorders.
We will also take an overarching quick look at the current landscape of healthcare access to treatment care for those living with bleeding disorders in South Carolina, including resource information when access barriers become a reality. We will discuss together; how we can move forward with women’s diagnosis and treatment care, serve our platelet and rare bleeding disorders community, and advance VWD treatment and diagnosis. We will hear updates within our treatment centers and health agencies with information important to those living with bleeding disorders.
Discover how members of the bleeding disorders community can become great stewards in their own health care needs. How can we together advance patient-centered affordable treatment care and shared decision making to drive positive healthcare outcomes and reduce our healthcare costs? Listen to the stories of those with lived- experience within the rare disease community and how they navigate barriers with access to care. Learn to advocate and share your voices for change in policies that affect this community. The Fall Family Advocacy Camp will look at health care today and help us prepare for the future. We are working to have host of local and national speakers well versed with information and we are grateful to all who are helping to make this another fantastic educational and supportive weekend for everyone.
Hotel accommodations will only be provided to those who plan to attend all educational sessions and activities on Saturday, Saturday evening, and Sunday morning. Members may still enjoy the educational day sessions and connections on Saturday without the hotel accommodations.
Members may also register for the Pathfinders Hike separate from Family Camp on Sunday. Registration is still required to attend.
Product & Services Updates, Advocacy Training and Awareness, Teen and Children Transitioning, Family Connections Activities, and Community Empowerment!
Before registering for this event, please take a moment to review our Photo Release Waiver, COVID Mitigation Waiver and Participant Expectations. By registering for this event, you are agreeing to these terms and conditions and will be required to agree to this during the registration process.
Registration closes- September 26th or when all rooms are received. Space is limited, register today!
Throughout the weekend event, there will be plenty of free time for families to connect and engage with other members of the community, building friendships and supportive relationships. Teens will gather in special sessions created especially for them as they learn to become more independent and goal driven. Children will also have the opportunity to engage in age appropriate activities selected just for them. Our Teen and Children’s programs will be hosted by our Child Life Specialist, Erin Van Nostrand, staff and board members, and our volunteers.
Sessions will run concurrently during our adult sessions on Saturday from 11:45 – 12:45pm & 2:00 – 3:30pm.
7:00pm – Teens to Escapology
Teens will enjoy a special team building group activity at Escapology of Columbia (Escape Room) on Saturday night.
717 Lady Street, Suite D, Columbia 29201
7:30pm -Teen Building Group Activity – Discover together as teams how to solve the mysteries of:
The Lost City: Can you find the treasure and escape the temple before it’s too late? Do you have what it takes to escape?
Budapest Express: A moving train. A killer with their sights on you as their next victim. Can you find them… before they find you?
Who Stole Mona: Uncover the mastermind behind the world’s biggest art hist. Do you have what it takes to return the priceless Mona Lisa to its rightful home?
Under Pressure: Stuck at the bottom of the ocean, you need to act quickly to get the stricken submarine back to the surface before the oxygen runs out and the immense pressure crushes the hull!
Parents will have the time for group connections and conversations in our meeting space at Escapology as your teens learn to work together to solve the mysteries and escape. Watch them live solve the mysteries on the TVs.
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Bleeding Disorders Foundation and a member organization of Hemophilia Federation of America.
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