This is more than a conference. It’s a movement. It’s your chance to connect, learn, lead, and advocate alongside those who share your purpose and passion for access to quality and affordable treatment care for South Carolinians living with bleeding disorders and rare diseases.
Our participation waiver has been updated. Before registering for this event, please take a moment to review our Photo Release Waiver and Participant Expectation Waiver. By registering for this event, you are agreeing to these terms and conditions and will be required to agree to this during the registration process. By registering, you are committed to attending the entire conference until Sunday at 12:00pm. (no early check outs are permitted).
Please note: There is a $25 registration fee per family or individual registering for this event. If the fee presents a financial hardship, we encourage you to contact Sue Martin, Executive Director, at the chapter office (864-350-9941) before beginning your registration. Registrations cannot be completed without payment.
Who is eligible to attend this special event:
We also want to emphasize that full participation, focus, and your commitment are expected throughout the event. While we strive to create a supportive and engaging atmosphere, this is a purpose-driven symposium—not a casual retreat at the beach. Your active involvement is essential to the success of our time together. Thank you for your understanding before registering to attend. You will be notified once your application is accepted to attend.
PLEASE NOTE: The hotel will require a credit card or debit card from each room reservation. They will place a hold of $100.00 per night which will be released upon check-out if no charges were placed on room and hotel services. BDASC only covers room and tax / resort fees per reservation. (if this is a challenge, contact Sue before registering) Registration closes on September 19th or when all spaces are full. A waiting list will be created once we hit capacity. Space is limited, register today!
Please take a moment to watch this video from James Romano, BDASC Legislative Coordinator on our Advocacy Program in 2025 to learn what we’ve accomplished this year and what the plan is moving into 2026.
We have a limited number of rooms reserved for this event in our hotel block. Please be sure to register early if you need to request a room. Community members are welcome to attend this event without a room if you live nearby or would like to secure your own accommodations. All attendees must be registered to attend FAMS. During the registration process you will be able to select your options and affiliations within the registration link.
Because of the selection of rooms available to us, we will place your party in the appropriately sized rooms. Upon confirmation of your registration acceptance, we will ensure that this works for you and your family. The two options that are available to us are the Grand Guest Room (sleeps up to 4) or the 2 Bedroom Suite (sleeps up to 8). Please Note: ONLY your immediate family members living within your home will be able to attend with you for this exclusive event.
Throughout the weekend event, there will be plenty of free time for families to connect and engage with other members of the community, building friendships and supportive relationships. Teens will gather in special sessions created especially for them as they learn to become more independent and goal driven. Children will also have the opportunity to engage in age appropriate activities selected just for them. Due to the high cost of childcare, our Teen and Children’s programs will be hosted by our staff, board members, and volunteers.
Sessions will run concurrently during our adult sessions on Saturday from 10:30am-12:00pm and 1:15pm – 3:30pm
Parents/Guardians of teens and children, please be aware, at registration you will be required to sign a consent form if your teen or child is participating in our programming. Please take a moment to read our updated consent forms by clicking on the button.
Marine Invertebrates
The beaches of South Carolina provide habitat to a variety of cool and unique marine invertebrates. During this interactive program, you will play a game to learn about native beach dwellers that call the beach home.
Animal Enrichment: Turtle Art
Do you like to paint? Some animals do, too! Learn how the Aquarium enriches the lives of animals, such as turtles, by letting them paint. This program is great for artists and art enthusiasts alike!
BDASC is proud to offer teens a hands-on chance to explore real world decision-making through a guided simulation.4:00pm – 6:00pm: Registration & Sponsor Exhibits Open
6:30pm – 8:00pm: Dinner Buffet & Presentation
7:00am – 9:00am: Breakfast & Sponsor Exhibits, Infusion Clinic
11:00am: Exhibit, Community Networking & Hotel Checkout
Presented by Robin Jones, MSN, MHA, RN, CPN, CPHON – Nurse Navigator, Hemostatsis and Thrombosis Center of South Carolina, Sponsored by Sanofi
Learn about Qfitlia. A new treatment option for Hemophilia A and B with or without inhibitors.
Infusion Session
