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Courtyard by Marriott Columbia Downh Annual Advocacy and State Legislative Days during March, the National Bleeding Disorder Awareness Month. This event will be held live with virtual meetings available for those unable to attend in person. We will be requesting proclamations throughout the state recognizing this special awareness month and attending event ceremonies as available. BDASC, along with our national partners, will be hosting advocacy training sessions leading up to our state days. This important advocacy event fosters educational awareness with state legislators on the effects living with a bleeding disorder can have on individuals and families. You will have the opportunity to have important discussions and to ask for support on key areas of concern for access to affordable treatment care. Since its inception, our State Capitol Advocacy Days have provided for over 600 individual meetings with the SC House of Representatives and our State Senators from districts throughout the state. These meetings are of key importance in helping our elected officials understand our communities unique needs, how access to medications and treatment are critical, and asking for support of our state programs that provide a safety net to those in need. Health care access is continuously challenging, including the barriers to high cost medications needed by individuals with bleeding disorders. Only you can help remove these barriers with your advocacy participation! This advocacy event is for the whole family with teen programming included. Thank you for raising your voice!
Advocacy training is provided in partnership with our national organizations and the South Carolina Hemophilia and Bleeding Disorders Advocacy Coalition and Ambassadors; The National Bleeding Disorders Foundation, Hemophilia Federation of America, our stakeholders, and other local and national advocacy partners.
Registration is required for meetings and hotel stays as available upon request. All food, meeting space, and educational materials are included for members of BDASC.
This short video below created in partnership with The AIDS Institute details what copay assistance diversion plans are and why the practice is harmful to patients.
National Hemophilia Foundation: Copay Accumulator Patient Impact
In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford their life-saving specialty medications. This video demonstrates how Copay accumulator adjustments affect patients requiring specialty medications with no generic alternatives.