Learning to self-infuse is an important component to independence for individuals with hemophilia or bleeding disorders which require treatment care of infusion therapy. Understanding how to self-infuse, mix medications, understand dosing needs, and how to administer treatment is important. BDASC partners throughout the year with our Hemophilia Treatment Center staff and HTC nurses to provide our members additional self-infusion education. Often, children are given the opportunity to learn self-infusion when they go off to summer camp and become encouraged by their peers. We provide mentoring opportunities at all our camps for our children and their families. We are excited to provide the additional self-infusion education to the entire family. BDASC’s teen retreat is a perfect example of the importance of learning self-infusion whereas teens can go off to camp and independently self-infuse in the morning before they engage in a day filled with adventure and fun.
Information will be provided to members and their families on the next opportunity to provide this important service to our members.
Objectives for this class will be to understand the impact homecare has on persons with bleeding disorders, review the benefits and risks and when is an appropriate time to start, explore options for alleviating needle phobia, discuss the transition to self-infusion, and discuss options for administration of factor concentrated and novel therapies in the home setting and the education required. Individual one-to-one training will also be available after the class discussions.
Sponsored by HFA, Presented by Sue Geraghty, RN, MBA
HTC Nurse Coordinator Robin Jones, RN, MSN, CPN, CPHON