H.E.L.L.OJoin us as we come together in unity and EMBRACE the opportunities of learning, connecting, sharing, and networking within the bleeding disorders community. Hear from experts in the field of bleeding disorders care and treatment. There is no other event like this one in our state. You will leave feeling empowered with support and knowledge. Please join us and see what it is all about. Please be sure to read all the information about the conference and apply online. There is no cost to those affected by bleeding disorders. We can’t wait to be together again!
670 Verdae Blvd., Greenville, SC. 29607 * 1-864-676-9090 * www.embassysuitesgreenville.com
Hotel Accommodations Include:
A fitness center, the golf course, tennis courts, 2 pools; one indoors and one outdoors, wheelchair accessible, WiFi, and beautiful grounds for gathering and visiting with friends of BDASC.
Due to a limited budget and limited rooms, we will only be able to provide one room per family. Once your application is accepted, you will be provided a hotel room reservation which will cover the hotel room and tax only for the number of days assigned. Two room suites have a sofa bed, microwave and small refrigerator and can sleep up to a maximum of 6 guests. Room accommodations are single king or double/doubles. Rooms will be assigned upon a first-come, first-serve basis to qualified BDASC Members. If you abuse this reservation by a no-show response once assigned, you will be bill for all room and food accommodations.
Guest room stays include a hotel breakfast buffet available before the morning session beginning on Saturday, June 7th at 7:00 am for you to enjoy at your own schedule. There is no breakfast meal scheduled for those not staying in the hotel. A mid-morning break with snacks will be provided in the Exhibit Hall. A buffet lunch will be included for all attendees. During our lunch break, you may check out of the hotel and have ample time to visit with our Exhibitor Sponsors and community members. Saturday’s closing dinner buffet will be provided for all attendees out in the beautiful Hotel Terrace for evaluations, feedback, and connections to the community. This will conclude the HELLO Conference.
Conference Check-In / Check-Out:
Check in with the hotel begins at 4:00 pm, Friday, June 6th and Check-out is 12:00pm on Saturday, June 7th.
Each guest will be required to present a valid credit card / debit card upon check-in, on which an amount of sufficient pre-authorization can be obtained (usually $50.00 per night) to cover any charges for the guest’s use of the hotel’s ancillary services. Please call the hotel for questions and BDASC if this will be of concern so we can make special arrangements if possible. Check-in with Bleeding Disorders Association of South Carolina is required and begins at 4:00 pm on Friday and will be across the atrium area in front of the meeting room for our Annual Meeting event. Your folders and name-tag will be provided. Rules for all hotels are the same; no children are allowed to stay in the rooms unaccompanied by an adult. A travel grant for mileage is available upon request if needed to attend. Please call the BDASC office prior to attending for an application.
Childcare: Ages 1-11 yrs.
Your children are very precious to us and we have taken great care and costs to provide you ease of mind during your educational empowerment on Saturday. We have contracted again with Corporate Kids Events, INC. (https://conferencechildcare.com/) If you are using our kids camp daycare accommodations, you must fill out the informed required consent and return it prior to attending the conference. YOU MUST PRE-REGISTER, and sign all forms. You are also responsible for all your children during the two-day event. YOU MUST always remain in the hotel. Please also be mindful of the high cost per child so please take into consideration with last minute cancellations where we cannot fill your child’s reserved spot. Space is limited and additional children may be on a waiting list. The childcare schedule and consent forms are on our website page.
Teen Programming: Ages 12 – 18 yrs.
We will have interactive classes and fun activities during the adult sessions especially designed for them. This year, The Leading-Edge Program, designed by Gut Monkey, will be hosting the Teen Program. Please register your teens on the registration online form. Please note we are not responsible for your teens during these session times. They will be on their own in participation but we will have adult leaders and chaperones attending these classes. Several waivers will be required for attendance and are located on the website under the teen programming. They must be signed and sent back before attending the teen program.
Brief Weekend Schedule
June 6th – Friday 5:30 – 9:00 pm:
BDASC Annual Meeting, Dinner Buffet & Chapter Recognitions
June 7th – Saturday 9:00am – 7:00pm: HELLO Conference Education Day Schedule:
Morning sessions will begin at 9:00am and run until 12:00pm for everyone with afternoon breakout sessions from 1:30 – 4:00pm. Exhibit Hall hours will be scheduled throughout the day. All meals and snacks are included. Our closing day casual dinner event will wrap up the Education Day Conference beginning at 5:30pm and lasting until 7:00pm.
Deadline for Application Registration:
Due to hotel venue requirements, all completed applications & teen programming / childcare forms must be received by Monday, May 5, 2025. You will be receiving shortly thereafter by email and phone call a conference reservations and hotel room confirmation should you need hotel room accommodations. Your application has not been accepted until you have received notice of confirmation from the chapter. If you do not receive a call or email, you have not been accepted to attend due to limited accommodations from the hotel. Limited hotel rooms are available for traveling guests and are awarded to BDASC members on a first return application basis and attendance history.
Join BDASC and it’s members for an interactive and engaging opening session of celebrations and connections with the South Carolina and national bleeding disorders community.
Friday, June 6th
4:00pm: Registration Opens
5:30pm: Chapter Opening Remarks and Premier Sponsor Welcomes
6:00pm: Connect and Celebrate: A Community Kickoff
6:30pm: Dinner Buffet –Annual Chapter Awards and Scholarships
7:00pm: Chapter Recognitions and Awards Ceremony
9:00 – 10:15am: Opening Keynote Plenary
Shared Decision Making and Advocacy
Facilitated by Gut Monkey, Sponsored by Pfizer
Join GutMonkey for an interactive and engaging session that will have you up, moving, and connecting with community members. During this session you’ll utilize the Be Brave Lab to explore shared decision making with a focus on knowledge, curiosity, and advocacy. You’ll enter our “lab” to get hands-on experience utilizing games, community building activities, and active conversations in order to experiment with different tools and concoct your own shared decision-making process that you can take with you beyond conference and our time together. GutMonkey’s programs have a history of giving people skills to engage with others more thoughtfully, live their values more comprehensively, and to play more often. This session is part of the Leading-Edge program and is sponsored by Pfizer.
11:00am – 12:00pm:
The Basics of Innovative Therapies: What You Need to Know – Presented by Dr. Paulette Bryant, Sponsored by the National Bleeding Disorders Foundation
We continue to see significant research and innovation in the treatment of hemophilia. It is becoming more important than ever to stay informed on all the advancements and innovation – what they are, how they work in the body and how safe they are. Understanding all the options including currently approved treatments and the promise and limitations of each type of therapy will enable you to have informative conversations with your providers to make the best treatment decision for you. This workshop will provide a basic overview of current and future treatment options for hemophilia and make these complex concepts more understandable.
Healthcare and Bleeding Disorders Today; What You Need to Know
Presented by BDASC Advocacy Coalition, Facilitated by Sue Martin, State Advocacy Lead
Panelist: Matt Delaney, National Bleeding Disorders Foundation
James Romano, BDASC Legislative Coordinator
Panel Advocates: Candi Mitchum, Coalition Chair
Join us as we discuss the healthcare landscape for bleeding disorders patients today. Hear from our local and national policy experts and what we can do together to have a voice for continued access to quality care and treatment. What is happening today, what are the barriers and threats we face, and how can you prepare for the future. We will discuss insurance access and barriers, the SC Marketplace, Medicaid, and more. Hear from our panelist and learn how you can be involved.
Women with Bleeding Disorders: What they Have and What they Need
Presented by Martina Willis-McCullough, BSN RN, Sponsored by Octapharma
For many women, receiving a diagnosis of a bleeding disorder can be challenging. Beliefs about the prevalence and characteristics of bleeding disorders in women may impede timely treatment. Effective treatments for women may differ from those for men. In addition to biological sex, disorder type and genetic variant may also have an impact on choice of treatment and its implications. Knowing whether you have von Willebrand disorder type 1, 2, or 3, or one of nineteen F8 variants associated with a higher risk of inhibitor formation in non-severe hemophilia A is important information. Understanding bleeding disorders in women, identifying symptoms, seeking diagnosis, as well as classifying disorder type and genetic variant are critical for successful treatment.
Martina Willis-McCullough has over 25 years of hospital and clinical experience, including a decade of specialization in the bleeding disorders community. She is an expert in care coordination for bleeding disorders patients and loves to share her knowledge and experience with patients, families, medical professionals, and schools. Martina currently works as a Factor My Way Clinical Nurse Educator at Octapharma USA.
Sessions still in development, more to come, stay tuned!
Finding Strength Through Struggle
Presented by Natalia Winberry, Senior Education Manager, NBDF, Sponsored by NBDF
As a person with a bleeding disorder, you have individual struggles and triumphs. There are many people – even some you have not met – who care deeply about the challenges you face. Join us for this interactive workshop that will focus on you; your hopes and your empowerment. You will learn how to harness frustration and turn it into positive action. You will walk away feeling energized and ready to face a new day!
Beyond the Needle
Presented by Shelby Smoak and Robin Cunningham, Sponsored by Sanofi
Join us for a new interactive session using the Vein Finder and sketch out your veins. We will be looking Beyond the Needle for an essential understanding of five components that can impact the infusion experience – vein anatomy, self-assessment technique, mental preparation, infusion tips and infusion fatigue. This session will facilitate an interactive discussion & activity to help attendees maximize success with at-home infusions.
Robin Cunningham, RN, MSN, MSCN has been a Hemophilia Therapeutic Education Manager (TEM) at Sanofi for 2 years, since the inception of the TEM Team in 2023 and has been with Sanofi for over 10yrs. In this role, TEMs provide product, administration & disease state education to Sanofi hemophilia patients & caregivers. By training, Robin is a nurse with over 30 years of experience in multiple disciplines, including participating as an adjunct professor for several colleges. She currently lives in Atlanta, Georgia & finds inspiration through helping patients and caregivers become better self-advocates and self-caregivers through the education she offers.
Financial Tips for Adults
Presented by Bradley Odac, Sponsored by Novo Nordisk
As we prepare for our futures, we invite you to join us as we learn some tips toward setting success in finances. Take your inventory, annual and monthly income, monthly expenses, debt, payments, interest, and more. You’ll learn the importance of investing in yourself and the future. You got this!
As we finish out the final events of our HELLO Conference, we will enjoy the time to connect with our families and friends out on the beautiful hotel terrace with a buffet dinner and Peer Speaker Session on treatment for Hemophilia A. This dinner session is Sponsored by Sanofi.
BDASC’s Annual Meeting has taken place for 52 years now and provides the South Carolina bleeding disorders community the opportunity to come together and network, learn, and enjoy the empowerment of education and support. The presentation of the Chapter’s Annual Awards are provided on Friday night; including our awarding of college scholarships, introducing new board members and celebrating those who have served. A teen track is provided concurrently with our adult programming. The HELLO Conference allows for attendees to enjoy a learning environment with educational presentations and breakout sessions. Information on current and future treatment therapies and bleeding disorders services are made available during our exhibit hall experience. Registration is required with BDASC for attendance. All meals, sessions and childcare are included with hotel accommodation available for our traveling guests. The event is free of charge for BDASC members.
Disclaimers: As with all BDASC meetings, your personal information is secured only with the chapter. No personal information gathered or used by BDASC during the event will be shared with outside parties or vendors. BDASC will endeavor to ensure that all online meetings are safe and secure to the best of our abilities. Several waivers will be included and must be completed with your application once accepted, including teen and childcare services.
We have contracted with Corporate Kids Events this year to care for your children ages, 1-11 years. CKE provides a wealth of experience and the total care you need to enjoy the annual HELLO Conference as your children enjoy activities designed for them. All children enrolled in the “Kids Camp” will need to be registered and a consent form MUST be filled out and sent in to the chapter for all children attending. Limited space is available, so please register early. You can read about Corporate Kids Events in the links below and access the consent form which must be filled out and sent to the chapter prior to the event.
We’re bringing the Video Game Truck back to kids camp at our Annual Meeting. For 2 hours our younger kids will have the opportunity to have some fun video game time in the truck. All of the latest and greatest games on the Nintendo Switch, Xbox One, PS4, and WiiU will be available
9:00 – 10:30am: Teen Programming – Part One
Enjoy a T.E.A.M Conversation! If I could go back and talk to me: what would I tell myself? Let us get to know one another and prep for the future. What you may need to think about.
Facilitated by our older adults in the community, Sponsored by BDASC’s TEAM Program
10:30am – 4:00 pm: Part Two
Leading Edge – The Be Brave Lab
Join GutMonkey for the Leading-Edge teen program! For this year’s Leading-Edge program, participants will utilize the Be Brave Lab to explore shared decision making with a focus on KNOWLEDGE (know what you want!), CURIOSITY (ask questions!), and ADVOCACY (stand up for your needs and wants!). Participants will enter our “lab” to get hands-on experience utilizing games, community building activities, and active conversations in order to experiment with different tools and concoct their own shared decision-making process that they can take with them to provider meetings and beyond. It’s not all serious stuff! We’ll have you laughing, up on your feet, and maybe even making some new friends. We’ll bring the surprises and the fun, you just bring yourself.
Facilitated by the Leading-Edge Program, Sponsored by Pfizer
When registering for the Annual Meeting, please register your teens to be enrolled in this fabulous program. The two consent forms below must be completed and returned prior to attending. These can be filled out once your application is confirmed and can be accessed online below.
Come learn about the current and future treatment therapies in the pipeline and supportive services available to our community as you explore and speak one-to-one with our sponsors in healthcare treatment therapies and services.
8:00am – 8:50am: Premier Sponsors Only
10:15am – 11:00am: All Levels Exhibiting
12:00pm – 1:30pm: Lunch Exhibiting all levels
2:30pm – 3:00pm: All Levels Exhibiting
4:00pm – 5:00pm: Final Exhibiting All Levels
4:15pm – 5:00pm: Discussing Self-Infusion
A look at Self- Infusions and Injections
Infusion Session
Presented by Robin Jones, MSN, MHA, RN, CPN, CPHON, Midlands HTC Nurse Coordinator
From I-85 N: From Anderson-I-85 N towards Greenville. Take exit #48B/US-276 W/Greenville onto Laurens Rd (US-276W) then turn right onto Verdae Blvd. Hotel is on the right. Parking: Self-parking and free.
From I-85 S: From Spartanburg-Take I-85 towards Greenville. Take exit #51/I-385/Greenville/Columbia onto I-385 N towards Greenville/Downtown. Off at exit #37/Roper Mountain Rd. Turn left continue as the road turns into Verdae Blvd. Go 1 mile and hotel is on the left. Parking: Self-parking and free.
From I-385 N: From Columbia/Charleston-Take #51/I-385/Laurens/Greenville to the left onto I/385 N. Get off at exit #37/Roper Mtn. Rd. Turn left onto Roper Mountain Rd. Continue straight as the street turns into Verdae Blvd. Go I mile and hotel is on the left. Parking: Self-parking and free.
From I-385 S: From Greenville-Take I-385 towards Columbia. Take exit #37/Roper Mtn. Rd. Turn right onto Roper Mtn. Road and follow onto Verdae Blvd. Go I mile, hotel is on the left. Parking: Self-parking and free.
Fun weekend activates available: Greenville’s Falls Park and Liberty Bridge. http://www.fallspark.com/Greenville Downtown and the Greenville Zoo. http://www.greenvillezoo.com/
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Bleeding Disorders Foundation and a member organization of Hemophilia Federation of America.
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