Tuesday, January 6, 2026 @ 7pm Pre-Training Zoom
Monday, February 2, 2026 @ 7pm Pre-State Days Training Zoom
February 24, 2026 (Training Evening with Dinner) 4pm-8:30pm
February 25, 2026 (Legislative Meetings – Breakfast & Lunch Provided) 8am – 3pm
Join the Bleeding Disorders Association of South Carolina as we prepare for National Bleeding Disorders Awareness Month this March! Our Annual Advocacy & State Legislative Days is a powerful opportunity to raise awareness and advocate for access to care.
We start off with an educational dinner the night before advocacy days to learn about the process of meeting with legislators. You will learn directly from experienced advocates how to share your story.
Travel and lodging grants will be provided to advocates participating in State Advocacy Days. All meals and advocacy training sessions are included as part of the program.
If you’re new to State Advocacy Days, rest assured that you’ll be paired with an experienced advocate and will never attend a meeting alone.
Meet with SC legislators to discuss the challenges faced by our community
Advocate for affordable access to treatment and life-saving programs
Participate in advocacy training sessions led by BDASC and national partners
Be part of over 637 impactful meetings with SC lawmakers since our event’s start
Registration is required for all participants – this is extremely important so that we can schedule meetings. We greatly appreciate everyone’s participation in State Advocacy Days and the time dedicated to supporting our shared mission. To ensure a respectful and productive experience for all, we ask that advocates attend all required trainings and arrive promptly for scheduled meetings. Participants are expected to dress in business casual attire and represent the community with professionalism. When engaging with legislators, please communicate respectfully and refrain from expressing personal political views.
This is your chance to make a difference. Together, we can break down barriers to care—your voice matters!
FOR IMMEDIATE RELEASE Columbia, SC — January 14, 2026 South Carolina Hemophilia and Bleeding Disorders Advocacy Coalition Hosts 2026 Legislative Breakfast at the State Capitol
As we prepare for the 2026 legislative season, we’re proud to reflect on all that was accomplished during our 2025 State Advocacy Days and throughout the legislative session. Advocates from across the state came together to raise awareness, share personal stories, and push for critical policy changes that support individuals and families living with bleeding disorders and rare diseases.
Featuring: Advocate Expert, Sue Martin
Description: Navigating the treacherous terrain of rare disease healthcare, battling copay accumulator adjusters, and fighting for fair access to life-saving treatments.
Discussion Questions:
Featuring: Patient Advocate, Whitney G.
Description: From tears to triumph: navigating the complexities of healthcare access for bleeding disorders, a heartfelt journey urging policymakers to support fair legislation like the HELP Copays Act for accessible and equitable healthcare.
Discussion Questions:
