The South Carolina Hemophilia and Bleeding Disorders Advocacy CoalitionThe Coalition’s Mission: To Empower the Hemophilia and Bleeding Disorders Community in South Carolina to speak to public and private decision-makers about improving Access to Quality and Affordable Health Care and Treatment.
We are thankful to the Advocacy Coalition Committee Members who came together from all regions throughout the state and nationally, to form the South Carolina Hemophilia and Bleeding Disorders Advocacy Coalition (SCHBDAC). Our commitment to the Bleeding Disorders Association of South Carolina and all South Carolinians affected by bleeding disorders is to improve access to Quality Care and Treatment. Improving lives is our mission.
We are very grateful to our 2026 Sponsors for supporting our advocacy program and the NBDF State Based Advocacy Coalition!
Genentech, Novartis, The Hemophilia Alliance, Sanofi, Pfizer, and Takeda for their support of the National Bleeding Disorders Foundation State Based Advocacy Coalition (SBAC) program.
Bleeding Disorders Association of South Carolina is a proud recipient of the Advocacy & Public Policy Chapter of Excellence Award of the National Bleeding Disorders Foundation (formerly National Hemophilia Foundation) in recognition of our commitment to advocacy and education initiatives both at the state and local level, aimed at improving the lives of those in the bleeding disorders community. Learn how you can help make a difference—join our advocacy efforts today!
A vital component of the Advocacy Coalition is the Ambassador Program, which comprises volunteer members in leadership positions tasked with establishing a strong grassroots network of bleeding disorders advocates throughout the state. Ambassadors serve as liaisons between the Advocacy Coalition and the public, focusing on increasing awareness of rare bleeding disorders and the challenges individuals and their families affected by them face. They also function as “county captains,” meaning that they serve as a regional or county resource and connection for people who have been, or have family members who have been, newly diagnosed, or who, for whatever reason, simply need information about issues (e.g., school nursing; educational resources; clinics and hospitals) relevant to bleeding disorders, particular to that county or region of the state. If you would like to be put in touch with someone in your county who may be a helpful source of information and support to you and your family, please contact the chapter, and we will put you in touch with someone who can help.
If you don’t see your county represented, consider joining our robust advocacy program and be a voice for your community! Contact Sue Martin, Advocacy Coalition lead to find our how you can get involved today!
Michelle Jackson representing Abbeville County
Dana Gurley representing Anderson County
Meggan Burton representing Greenville County
Mandy Weber representing Greenville County
Ric Martin representing Greenville County
Mara and Daniel Lubic representing Greenville County
James Ferebee representing Greenwood County
April Baird representing Laurens County
Virginia Snead representing Laurens County
Brenda Garrett representing Laurens County
Dustin and Jessica Howells representing Oconee County
Corrie Snider representing Spartanburg County
Eric Townsend representing Spartanburg County
Mike Walden representing Union County
Dr. Joey Krakowiak representing Aiken County
Bonnie Phifer representing Aiken County
April Rankin representing Aiken County
Tamera Sergent representing Aiken County
Holly Penfield representing Lancaster County
Erin Van Nostrand representing Lexington County
Ward and Marilyn Keith representing Lexington County
Aaron and Brantley Smith representing Richland County
Christine Evans representing Richland County
Tiffany Braham representing Richland County
James and Waltene Whitmire representing Richland County
Warren and Sharon Ingram representing York County
Denise Harkins representing York County
Felicity Harkins representing York County
Shelley Crisp representing Berkley County
Ashely Segura representing Colleton County
Cori Ann Adams representing Charleston County
Mike and Brent Maloy representing Dorchester County
Dianna and Mike Mulligan representing Charleston County
Whitney Gallaway representing Horry County
Greg and Kerrie Cornell representing Horry County
Teresa Gatch representing Horry County
Michael Edge and Cassandra Smith representing Marion County
Lisa Bordelon representing Sumter County
Jean Ford representing Sumter County
Additional Advocacy Events in 2026 – to be scheduled throughout the year!
