Resources

Women and Bleeding Disorders is NBDF’s health initiative to address the critical issues faced by women with bleeding disorders.

Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.

National Organization for Rare Disorders (NORD)

National Headquarters, CT Office

1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
Phone: 617-249-7300
Fax: 617-249-7301

Website:

www.https://raredisease.org/

The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

The Hemophilia Alliance Foundation

Phone: 313-657-5913

Website: https://hemophiliaalliancefoundation.org/

The Hemophilia Alliance Foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.

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Center for Disease Control

The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.

As a global charity, we focus on the well-being of others. We give you the freedom to live fearlessly, confident in the coverage we provide as the world’s most dependable medical identification and information network.

The Colburn Keenan Foundation is a charitable organization dedicated to improving the health and well being of individuals and families living with chronic illnesses, with priority placed on those living with bleeding disorders.

To support individuals and community members with chronic conditions through physical fitness, fitness education, advocacy, financial assistance of physical rehabilitation, and compassion.