The Bleeding Disorders Association of South Carolina’s “Ultra Rare Bleeding Disorders Support” exists to support and empower individuals and their families who are diagnosed or affected by rare bleeding disorders, such as Glanzmann’s Thrombasthenia, Bernard-Soulier Syndrome, platelet disorders and rare factor deficiencies. We help to facilitate educational and supportive opportunities to those affected by rare bleeding disorders. We aim to raise awareness to the general public and healthcare professionals.
Our goal is to help:
Inherited Platelet Disorders (Bernard-Soulier Syndrome, Glanzmann’s Thrombasthenia, Platelet Storage Pool Disease, Immune thrombocytopenia)
There are many different types of bleeding disorders, and they can affect people in different ways. The National Hemophilia Foundation provides support and education for all different types of bleeding disorders. Check out the information that they provide on inherited platelet disorders.
Link: https://www.hemophilia.org/bleeding-disorders-a-z/types/inherited-platelet-disorders
ITP Conference
More than 160 attendees, from 10 countries and 25 states, traveled to Seattle, Washington for the invaluable opportunity to, once again, gather as a community, reconnect with and learn from one another, and reap the natural benefits of this shared experience. A robust agenda of both large and small group sessions featured PDSA’s Medical Advisors and other medical professionals and offered our attendees a wealth of information. Check back for future conference dates.
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Bleeding Disorders Foundation and a member organization of Hemophilia Federation of America.
Copyright © 2024 Bleeding Disorders Association of South Carolina. All Rights Reserved.
Member of The National Bleeding Disorders Foundation | View our Privacy Policy | Website managed by Blotter.com
