Friday, March 22nd
4:00pm: Registration
5:00pm: Opening welcomes
6:15pm: Dinner Buffet and Keynote Presentation
8:00pm: Group Activity at “Group Therapy of Greenville”
Saturday, March 23rd
9:00am – 4:00pm: Educational Sessions
~followed by free time to explore Greenville
6:30 – 9:30pm – Saturday Evening Group Event & Dinner, TopGolf of Greenville
Sunday, March 24
9:00am-12:00pm – Wrap up Educational sessions, Group discussions & evaluations.
Group Activities: Let’s have fun with some Group Therapy of Greenville, Friday night!
We will walk together next door to Group Therapy and have 2 ½ hours of Wacky Mini Golf, Axe Throwing or Duckpin Bowling, and 2 beverage tickets for a fun group activity.
We are excited to provide this weekend symposium to our membership adults, ages 18 – (with an adult 21 or over) 21 and over, who are living with bleeding disorders themselves, are carriers of a genetic bleeding disorder, or are caretakers for someone in their immediate family who is affected. We are excited to bring all adults into the event so couples can take a weekend away from the kids, single men and women can enjoy time with community members for fellowship and support, and everyone can enjoy being connected while learning in an atmosphere of beauty and opportunity, such a downtown Greenville. The venue is inviting with so much to explore in the new Camperdown area and within walking distance to Falls Park and Liberty Bridge. We will be providing group activities throughout the Symposium, while providing the time for women and men to have separate sessions related to their unique needs. Start planning now and enjoy time away from the busy lives we all live today. Come relax while joining the South Carolina Bleeding Disorders Community in support during the National Bleeding Disorders Month of March, while leading up to the World Hemophilia Day of April 17th.
Registration acceptance will be limited so we suggest registering as soon as you know you can attend. Registration confirmation will be confirmed once all applications have been received. Travel grants for gas support may be available for those living in region 3, (Lowcounrty) who request an application for support.
REGISTRATION CLOSES: MARCH 7, 2024 or sooner depending on the amount of qualified applications received.
Group Activity & Dinner off site at Top Golf of Greenville, Saturday night, sponsored by CSL Behring and BDASC. At Topgolf, there’s no pressure to have a good golf swing or score a lot of points. It’s all about everyone having fun.
Each of our venues features climate-controlled hitting bays for year-round comfort with HDTVs in every bay and throughout our sports bar and restaurant.
This event is sponsored by BDASC and CSL Behring.
Keynote Dinner Presentation, E + R = O, Events + your Response = the Outcome
Presented by Jim Stocker, Life Coach
His daughter, Ali, who was paralyzed at the age of 2 after a car accident, made history by becoming the first performer in a wheelchair to win a Tony Award. Jim will share his story of responding to adversity. The events in your life do not dictate the outcomes, your response does! Learn how the power is with you. How are you going to choose calm over chaos and reset? Will you just continue down a path filled with anxiety and feeling overwhelmed? Or will you decide to reset your mindset with the power of awareness, optimism, and gratitude? You can either decide to allow your growing anxiety to steal your dreams or you can choose that despite the hardships, you have the power to control what happens in the space between your ears. Your mind. To develop this growth mindset which will allow you to manage your emotions and live your life despite the challenges you face, you need a formula. That is exactly what you will get when you learn the powerful equation E+R=O.
Men’s Session: Uncovering Our Treasures Workshop
Every discussion you make needs to become a value clarifying exercise. We all need to stop and pause and reassess who we are, what are our principles, how do we want to be remembered. Coach Stoker will guide you through a dynamic exercise to uncover these treasures.
Presented by Jim Stroker
Breathing and Meditation; Does It Really Work? What is the Benefit?
Presented by Jim Stroker
Women’s Session:
Managing Multiple Priorities and Taking Care of You!
We all live in a very busy world. Finding a work – life balance can be difficult and finding the time to take care of yourself is often put off and sometimes never happens. Managing multiple priorities is tricky. Come share and engage in this informative session.
Presented By Anna Bell
For Men and Women:
Couples and Relationships While Living with Bleeding Disorders
Presented by Anna Bell
Being a spouse of someone with a bleeding disorder or chronic condition can sometimes be challenging for both partners. Starting a new relationship, or keeping the laughter during stressful times. Enjoy this session for engaging conversations and activities to enhance your relationships.
Von Willebrand Disease and Ultra Rare Bleeding DisordersNovice to Experienced: Let Us Look at VWD and Rares
We will start with the basics and advance to a deeper understanding of VWD and Ultra Rare Bleeding Disorders. We will enjoy a level of understanding for those new to VWD or Ultra Rares, and those who have been living with them for three or more years. We will split into groups and have conversations around your burning questions and hear practical solutions by those who have lived experience.
Presented by Sue Geraghty
Part 2: VWD and Rares: Now for Practical Information: Let’s discuss schools, work, heading to college, having relationships, Emergency Rooms, HTC Visits, Securing a dentist, and more. Nothing is off the table to discuss.
Presented by Sue Geraghty
Gene Therapy in Hemophilia – Hemophilia A & B
Let’s find out what all the buzz is about – from curiosity to eligibility and beyond. A one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. We’ll share the findings from clinical trials and what they could mean for you. Learn how to get started, what questions to ask your doctor, and hear one patient’s experience.
Sponsored by CSL Behring and BioMarin
Chapter Updates: Embracing A New Normal in our Ever-Changing Landscape
Ask the experts! A moderated conversation with you leading the conversation. What you always wanted to know but were afraid to ask. What is on your mind? Put your questions into our “Question Jar” throughout the weekend and we all will try to answer your burning questions in the last session on Sunday.
Anna is a graduate of The Catholic University of America Master’s Program in Social Work with a concentration in Gerontology, a graduate of Capella University with a Master’s Degree in Public Service Leadership, and a graduate of Walden University with a Master’s Degree in Philosophy. She is currently ABD at Walden University where she is pursuing a PhD in Human Services. She is Clinically Licensed to Practice in the District of Columbia, Maryland, Virginia and the State of Ohio. She has worked in a variety of Social Work Settings and provided counseling to various populations including couples, children and adolescents, women, and geriatric populations. For the last twenty-five years she has been employed at the District of Columbia Child Welfare Agency where she has worked in various areas mainly Training, Licensing, Policy, and Clinical Case Management. Anna was promoted to Program Manager of the Foster Parent Training and Licensing Division in 2012. Anna is an active part of the management team at CFSA and heads several committees involving policy creation, program administration and supportive services. Anna joined the Hemophilia Foundation of America consultancy staff in 2015 as a facilitator/speaker, conducting trainings, seminars and facilitations throughout the 50-member organizations. Anna conducts life/professional coaching sessions as well as various workshops throughout the Washington DC Metropolitan Area through her company Bell-ievable, Inc., where she focuses on Development of Leadership, Self Esteem and Self Determination, through group processes and facilitation. Anna is a 26 year member of Delta Sigma Theta Sorority Inc..
Coach Stroker’s unique gift to craft and deliver motivational and educational keynote seminars resonates with audiences ranging from Fortune 500 CEO’s to thousands of high school students throughout the country, as well as Nonprofits, Military, Gaming Associations, Healthcare Practitioners, and Native Americans.
Some of Jim’s Keynote topics include: How to reduce anger and conflict through example, strategies for embedding a culture of gratitude within your organization and how gratitude can impact daily performance and behavior. Jim also speaks about managing and deepening emotional intelligence in the workplace and how to train employees on powerful reactions to difficult situations.
Coach Stroker’s wellness program has been cited as one of the nation’s best and he is also the creator of “Inspirational Hotline”, a morning message delivered to 700 students. He has over 30 years of experience within the New Jersey Public School System as a sports coach as well as a wellness educator. Coach Stroker is an inductee to the New Jersey Coaches Hall of Fame and a recipient of the prestigious Distinguished Alumni Award at Ridgewood High School.
Sue Geraghty worked as Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center for 25 years where she retired in 2013. She has over 45 years of nursing experience and currently she is working as an independent consultant in the areas of hemophilia and health care education. During her time as nurse coordinator at the Hemophilia Treatment Center she sat on several national committees including the Nursing Working Group for the National Hemophilia Foundation. Her areas of interest within the bleeding disorder community include new families affected with a bleeding disorder and adult patient issues, women with bleeding disorders, patients with inhibitors, and orthopaedic issues. She has an associate degree in nursing from Lander College, a Bachelor’s degree in nursing from the University of NC Charlotte, and a Master’s in Business from the University of Colorado Denver. Sue continues to educate and speak at many bleeding disorders camps, chapter meetings, and national conferences. Her passion for bleeding disorders and patients is spoken in every talk she provides. We are grateful to have her back with us again! She will lead our VWD sessions and more.
Nurse Navigator, Hemophilia Treatment Center of South Carolina
Social Worker Children’s Cancer and Blood Disorders HTC
Infusion and Injection Clinic will be made available for those adults wanting to hone in on their Infusion skills, learn self-infusion skills, or just looking for more information on the skills needed to be successful with their treatments, or treatments for their loved ones.
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Hemophilia Foundation and a member organization of Hemophilia Federation of America.
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