Friday, April 4th
4:00pm: Registration
5:00pm: Opening welcomes
6:15pm: Dinner Buffet and Keynote Presentation
8:00pm: Group Activity at “Group Therapy of Greenville”
Saturday, April 5th
9:00am – 4:00pm: Educational Sessions
~followed by free time to explore Greenville
6:30 – 9:30pm – Saturday Evening Group Event & Dinner, TopGolf of Greenville
Sunday, April 6th
9:00am-12:00pm – Wrap up Educational sessions, Group discussions & evaluations.
Group Activities: Let’s have fun with some Group Therapy of Greenville, Friday night!
We will walk together next door to Group Therapy and have 2 ½ hours of Wacky Mini Golf, Axe Throwing or Duckpin Bowling, and 2 beverage tickets for a fun group activity.
Off site at Top Golf of Greenville, Saturday night, sponsored by CSL Behring and BDASC. At Topgolf, there’s no pressure to have a good golf swing or score a lot of points. It’s all about everyone having fun.
Each of our venues features climate-controlled hitting bays for year-round comfort with HDTVs in every bay and throughout our sports bar and restaurant.
This event is sponsored by BDASC and CSL Behring.
Join Us for an Unforgettable Weekend of Connection, Support, and Fun!
We’re thrilled to invite our adult members, ages 18 and up (with an adult 21+), who are living with bleeding disorders, are carriers of a genetic bleeding disorder, or are caretakers of someone affected by a bleeding disorder to come together for a truly special weekend! This event promises to be a one-of-a-kind experience where you’ll connect with others who share your journey, recharge, and make lasting memories.
Whether you’re looking for a refreshing break from daily responsibilities, an opportunity to meet new friends, or a chance to strengthen the bond with your partner, this weekend is for YOU! Parents can relax and recharge, while single men and women have the chance to connect, share experiences, and support one another. Together, we’ll celebrate our shared strength and support our von Willebrand community.
What to Expect:
Group Activity & Dinner at Topgolf of Greenville:
On Saturday night, we’ll enjoy an exciting group activity and dinner off-site at Topgolf of Greenville, sponsored by CSL Behring and BDASC. No need to worry about your golf skills—this event is all about having fun! Whether you’re swinging a club for the first time or are a seasoned golfer, the atmosphere is relaxed and inviting. Each climate-controlled hitting bay offers year-round comfort, and you’ll be able to enjoy the game while watching HDTVs in every bay and throughout the sports bar and restaurant. It’s a great chance to unwind, connect, and enjoy a delicious meal together in a lively, upbeat setting.
This is your chance to take a well-deserved break while being part of a powerful community. Enjoy the beauty of the city and the opportunity to recharge your mind, body, and spirit.
Registration Details:
To help offset rising event costs, there is a one-time fee of $25 per party. Space is limited, and registration will be confirmed on a first-come, first-served basis, so don’t wait—secure your spot today! (Event Fee Sponsorships are available for those wishing to apply for an event waiver. Contact Sue for information on applying – 864-350-9941)
We are provide Travel Grants (Gas Cards) for those traveling more than 150 miles round trip or for those who need assistance to attend. Would you be interested in learning more and making a request? Let us now in the registration link as you register.
Deadline to Register:
Don’t miss out! Registration closes on March 13, 2025, or sooner if the event fills up.
Start planning your weekend getaway now and join us for a time of growth, connection, and fun. We can’t wait to see you there!
Von Willebrand Disease and Ultra Rare Bleeding DisordersNovice to Experienced: Let Us Look at VWD and Rares
We will start with the basics and advance to a deeper understanding of VWD and Ultra Rare Bleeding Disorders. We will enjoy a level of understanding for those new to VWD or Ultra Rares, and those who have been living with them for three or more years. We will split into groups and have conversations around your burning questions and hear practical solutions by those who have lived experience.
Presented by Sue Geraghty
Part 2: VWD and Rares: Now for Practical Information: Let’s discuss schools, work, heading to college, having relationships, Emergency Rooms, HTC Visits, Securing a dentist, and more. Nothing is off the table to discuss.
Presented by Sue Geraghty
Bleeding Disorders Association of South Carolina is a 501(c)3 non-profit organization and a chapter of the National Bleeding Disorders Foundation and a member organization of Hemophilia Federation of America.
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